It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
ganglioglioma regrowth
A year ago, my grandson had a ganglioglioma removed. At that time, the surgeon said he got all he could see. This week my daughter got a call from his recent MRI and while they said the MRI was okay, there is a small area where it was sectioned that looks like "regrowth" and they will monitor it in six months. I do not know what to think? This was suppsedly a slow growing tumor and already it is growing back? It is in his speech and retention area. I am so worried that it can grow fast and become inoperable. Can anyone tell me anything about this? I have been sick to my stomach about this. He is just 20 years old and the past year has been hard on him. I can't seem to stop crying about this news. I felt blessed when it was non-cancerous, but do not know what to think now.
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Replies to This Discussion
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Permalink Reply by Becky on -
I'm really sorry about the news :( I feel like waiting six months is almost too long. If it is supposedly a slow growing tumor, and there has been re-growth in less than a year, I don't think I would feel comfortable waiting six more months.
I'm not sure what the differences in looks are on an MRI, but is there a chance that it is scar tissue? I didn't have surgery to resect so I wouldn't know...
Also, I'm not sure the differences between a ganglioglioma and an astrocytoma are, but my oncologist and neurosurgeon both told me that astrocytomas have a tendency to come back and at a worse grade. I don't know if this is true with all gliomas, but if it is, that would be another reason I would be hesitant to wait six months.
I hope you get all of your questions answered and that everything gets better. Did your grandson ever figure out if there is a Disability Support Services on his campus? It has been a tremendous help to me, especially with extensions on exams and such. My ability to write quickly after surgery has gone down, so it is nice to know I have more time to finish if I need to and such.
Becky
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Permalink Reply by Penny Harrison on -
I am going to try and talk my daughter into taking him in 3 months, but not sure she will do that. They said it looks like regrowth. I would guess they would know the differenece between scar tissue and regrowth. He is under treatment for memory loss is in the process of going to Disability Services at the local college. His Dr. will fill out papers and tell the school what he needs. He is still at home going local college, but would love to get back to his school. The Dr. said not till fall and I suppose that will depend on what happens after his next MRI.
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Permalink Reply by Penny Harrison on
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Has anyone had one of these tumors that has come back? Has anyone had more than one brain surgery for his/her brain tumor?
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