It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Secondary surgery on cerebellar pilocytic astrocytoma.
Thank you.
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Permalink Reply by Karen T. Smith on -
My tumor is a different type but is also on the cerebellum. I have been told that I would need a second surgery because the resiual tumor continues to slowly grow. So I can not directly directly answer your question. My concern would be the effect the tumor growth will have on your son. My NS did tell me that alot of advances in brain surgery have been recently made and that it is not as hard on the patient. I know it is all so hard on you but I think I would take the route that is best for your sons future. I have 2 sons so I understand your fears. Take care-Karen
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Permalink Reply by Izabela on -
Thank you Karen, we are going with the surgery will be in June 2012. I'm petrified.Izabela
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Permalink Reply by maryann harry on
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my 5 year old grandson has a tumor on his brainstem. i don't know the name of it tho. he had two surgeries to partially remove as much as they could may 2011. he had surgery on his 3rd ventrical a month later. then after mri's showed some regrowth , and headaches started happening, they found that the 4th ventrical was blocked. in may 2012, they went in and opened the ventrical up and went in and removed more tumor from the brain stem. from this surgery he has had trouble swallowing and his eyes are really crossed, they have been bad, but now they are really bad. 4 days after this surgery they went in and put in a g-tube and a port. two weeks later he started swelling around the incision area and they went to surgery and put in a shunt. this week he started chemo. there is always the chance of problems but when it came down to it. he had to have the surgerys. there was no other choice at the time. praying they can find a surgeon to straighten out his eyes, but that will probably have to wait to see if swelling or tumor shrinking will take pressure off of the optic nerves. after his first two surgeries, he had to relearn how to sit stand walk etc. this time he did bounce back right away , his main problem is the eyes and swallowing. so you do have to weigh the risks of the regrowth with the risks of surgery. hang in there. i know its stressful.
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Permalink Reply by David Silbaugh on -
Izablea,
I just read your post...I had the same tumor/surgery (about a year ago), but the Dr. was able to remove it all. My thoughts and prayers are for your son and your family. I have kids as well...so I can somewhat understand what your family must be going through. I wish your son and your family the best.
Izabela said:Thank you Karen, we are going with the surgery will be in June 2012. I'm petrified.Izabela
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Permalink Reply by Karen T. Smith on
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It is getting close to the end of the month. Hope all has gone well. Please let us know. Karen
David Silbaugh said:Izablea,
I just read your post...I had the same tumor/surgery (about a year ago), but the Dr. was able to remove it all. My thoughts and prayers are for your son and your family. I have kids as well...so I can somewhat understand what your family must be going through. I wish your son and your family the best.
Izabela said:Thank you Karen, we are going with the surgery will be in June 2012. I'm petrified.Izabela
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