My next MRI is in August (I go every eight months) and I am already beginning to feel the fear creep in.... I am a posiive person and have really focused on how well things have gone so far, how I have made improvements and how blessed I am. But today, I allowed the fear to get the best of me. I started thinking about another surgery or regrowh or the watching and waiing game. They say that in terms of gains, I have exceeded expectations and that this may be "as good as it gets." So, I have dilligently been working on accepting this "new normal" while always remaining hopeful. I am blessed and don't want to seem ungrateful....it's just one of "those" days. Does this make sense? How do you mentally/emotionally get ready for these appointments? I am three-years post-op and still learning! Thanks for any input!

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Hi Amanda.  I still get anxious everytime I go for my MRI's too.  I have gone every 3 months for at least 3 years.  It's like going to the gyno, no matter how old you are, it never gets more comfortable.  You just have to stop and breathe!  I am still getting used to this "new normal" too, and it stinks, but you have to carry on.  I just had my follow up MRI from my surgery and radiation.  It wasn't what I hoped, but we will keep watching.  I am not looking forward to another surgery, but it looks inevitable. I have "those days" too.  It is natural.  Cry if you have to...let it out.  Then it is easier to go back to being positive!!  Besides, you always have us!! =)
Thanks ladies! It is such a relief to be able to come to this site and be understood! I think that in the earlier days of recovery, I almost didn't have emotions-just so focused on survival, learning to walk, learning about meds and side effects-you almost dont have the time or emotional resources to deal with feelings....and now, here they are! You both inspire me! Thanks again! I will remember to breathe!

Kim Repsha said:
Hi Amanda.  I still get anxious everytime I go for my MRI's too.  I have gone every 3 months for at least 3 years.  It's like going to the gyno, no matter how old you are, it never gets more comfortable.  You just have to stop and breathe!  I am still getting used to this "new normal" too, and it stinks, but you have to carry on.  I just had my follow up MRI from my surgery and radiation.  It wasn't what I hoped, but we will keep watching.  I am not looking forward to another surgery, but it looks inevitable. I have "those days" too.  It is natural.  Cry if you have to...let it out.  Then it is easier to go back to being positive!!  Besides, you always have us!! =)

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