It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
What to do while waiting for surgery?
So after meeting with the the various doctors at UCLA, I've decided to go ahead and have the open biopsy. It is scheduled for August 4 so will come up pretty soon. In the meantime, there are various things that will need to be done in preparation for the biopsy (DOPA PET scan) and also logistical things with my workplace (e.g., FMLA, SDI paperwork, etc...). Although these things along with my normal work responsibilities will keep me busy, I have found myself thinking a lot about the procedure and possible outcomes and what my quality of life may be afterward. For my first biopsy, I was really calm before the biopsy and didn't think much of it because things happened so quickly.
For those of you had a relatively long wait time in between the scheduling of your biopsy and the actual biopsy date, how did you cope with the wait?
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Replies to This Discussion
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Permalink Reply by Beth Rosenthal on -
Hi John. I don't have much to offer you on that subject, except good luck. I think that there was the only one benefit of being diagnosed so young. Aside from feeling my parent's anxiety, I didn't understand how serious this diagnosis was and is. I was a gymnast before my surgery. I lived handsprings and no handed-cartwheels. I can't imagine preparing for the road ahead for my surgery, especially in 1986. I hope that there won't be many possible effects that you'll need to adjust to. I am thinking of you and am hoping that you get the best possible outcome.
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Permalink Reply by Todd Koonce on -
John, I had 4 brain surgeries for my seizures- I am now seizure free and I am living a productive life. My strength came from the Lord. He got me through, believing that He would take care of me, just as He did. I will also offer you this, if it will help....I don't know if you are struggling to afford your meds, but I have come across this site, which is allowing me to get my medication for Much less(I can also save money on labs and MRI's/X-Rays. It is a Free site to make use of: www.prrxcut.com/mnc00086 Perhaps it will help you. Praying for you. Todd
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