"Hi Darin
Sorry I'm late to the discussion. My husband has a pituitary adenoma which was partially resected 3 years ago - He still suffers badly from fatigue - We're on our 4th endocriniologist at the moment he thinks he may need growth…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Ali's Discussions
Post Traumatic Stress
3 Replies
Hi Guys, I'd be interested in your feedback on an issue thats really concerning me at the moment,my partner ( and soon to be husband ) Felim, is just coming up on a year since he was diagnosed with…Continue
Started this discussion. Last reply by Amanda Oct 16, 2010.
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Ali replied to Beth Rosenthal's discussion IJB's 1st brochure being made"Hi Beth
As a partner of a benign brain tumor patient the site helped by giving me an avenue to talk to people who know exactly how we feel and understand the physical effects of a benign tumor.
During his illness we felt no one really understood…"
Amanda replied to Ali's discussion Post Traumatic Stress"I think that when you are going through it (surgery/treatment/recovery), your body doesnt even allow you to process all the emotions-youre in survival mode! Once my body felt a little stable, the emotions and fears just came to the surface! It…"
Ali replied to Ali's discussion Post Traumatic Stress"Thanks Amanda, I suppose I was naive in thinking that once we had surgery and treatment behind us the worst is over, I think you just enter a different phase of it. I was thinking therapy would be helpful to address not just the issues he has with…"
Amanda replied to Ali's discussion Post Traumatic Stress"Hello. I am 31 and am about 31 months post-op now. I started going to counseling about eight months after my surgery to address symptoms similar to ptsd. I have really benefitted from therapy, learning ways to cope and relate to those who arent able…"
Ali posted a discussionPost Traumatic Stress
Hi Guys, I'd be interested in your feedback on an issue thats really concerning me at the moment,my partner ( and soon to be husband ) Felim, is just coming up on a year since he was diagnosed with a pituitary macrodenoma, which was partially resected by transphenoidal approach last year and he finished his 6 week course of rt in April.He has suffered from headaches almost daily and extreme fatigue.But over the last few weeks, he has been displaying what looks like Post Traumatic Stress.There…See More
Beth Rosenthal left a comment for Ali"Hello Ali and thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with…"
Profile Information
- Who are you?
- Family
- What type of tumor do/did you have?
- Pituitary Adenoma
- What kind of info do you want from this site?
- Not very well
- What city & state or city & country are you located in?
- People going through the same experience and not having to listen to ' at least its benign' all the time
- How did you find itsjustbenign.org? Please be as specific as possible.
- Ireland
Comment Wall (1 comment)
- At 11:39pm on April 23, 2010, Beth Rosenthal said…
- Hello Ali and thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. Please message me with any questions or comments. Thanks again for joining.
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