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Amanda Robinson's Page

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John and Amanda Robinson are now friends

Jan 23

Beth Rosenthal left a comment for Amanda Robinson

"Hello Amanda and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with…"

Jan 23

John left a comment for Amanda Robinson

"Hey Amanda, I can sympathize where you might be at the moment. I had a needle biopsy last February which turned out inconclusive and had to deal with wondering what the heck I had for several long months. Was it a glioma, a hamartoma, cortical…"

Jan 22

Amanda Robinson is now a member of It's Just Benign

Jan 22

Welcome Them!

Profile Information

Who are you?: Survivor

What type of tumor do/did you have?: Not sure at the moment....had an MRI done, and 5 different ideas were mentioned from the radialogist...lastly being focal dysplasia or low grade glioma...seeing neurosurgeon Feb 10

What kind of info do you want from this site?: Anything I can get to give me hope!

What state or country are you located in?: New Mexico

How did you find itsjustbenign.org? Please be as specific as possible.: googles brainstem glioma

Comment Wall (2 comments)

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At 5:47pm on January 23, 2012, Beth Rosenthal said…: Hello Amanda and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. There is a Q & A with a neurosurgeon and a nutritionist under the Resources tab. Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety, etc. Thanks again for joining. Feel free to contact me with any questions or concerns.

At 10:43pm on January 22, 2012, John said…: Hey Amanda, I can sympathize where you might be at the moment. I had a needle biopsy last February which turned out inconclusive and had to deal with wondering what the heck I had for several long months. Was it a glioma, a hamartoma, cortical dysplasia...etc. I eventually decided to have a craniotomy in August which revealed the tumor to be a grade II oligoastrocytoma. I know, the waiting around can be horrible, try and hang in there. The meeting with the neurosurgeon will probably clear things up a bit more. As you already probably know, just be your own best advocate and ask all the questions you have. Let us know if you need anything.