"Carey, I just found your comment from July, forgive me. I am so happy for you that you are doing so well......am sorry that you have other health problems. This situation has also affected other things with my body. Never took meds, now it's…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Carey's Page
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Carey left a comment for Ann Manzi"Hi Ann!- it is great to connect with someone else who is on this life journey with meningioma... I have been tumor free for three years. I have not had to have Stereo Static Radio Surgery so far. I do not have seisures but I have several minor…"
Carey replied to Beth Rosenthal's discussion Moving On Past Your Tumor"Hi marilyn- you do have a friend here- I seen your post further down and you seem to have a wounded heart- Oh marilyn this is a difficult journey- you are not alone and you do matter you do have great worth- I would love to be a friend to you- and…"
Ann Manzi left a comment for Carey"Hey Carey, so you also had a meningeoma..... me too. It's almost my one year since my craniotomy and then one month of radiation in the winter. I don't consider myself a survivor yet..... I still have seizures and the tumor isn't…"
Beth Rosenthal left a comment for Carey"Hello Carey and Welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age…"
Carey replied to Beth Rosenthal's discussion Moving On Past Your Tumor"Hi Beth I am new to this site and I too had a long journey before I was diagnosed with a meningioma - I'm checking out this site for friends and support as I have none at this time. I am a 3 year Meningioma survivor"
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- Meningioma
- What kind of info do you want from this site?
- Support
- What city & state or city & country are you located in?
- California
- How did you find itsjustbenign.org? Please be as specific as possible.
- Brain tumor website list of online support
Comment Wall (3 comments)
- At 6:36pm on September 23, 2012, Ann Manzi said…
Carey, I just found your comment from July, forgive me. I am so happy for you that you are doing so well......am sorry that you have other health problems. This situation has also affected other things with my body. Never took meds, now it's crazy. My blood pressure is now normal, thyroid is now working and a few other things to work on. My seizures still occur with meds, but have reduced in frequency. The down side is that they are now also on my left side. I work full time, which I love but the price I pay is fatigue. After surgery and radiation, my body has a threshold for energy and then a nap is necessary. Hope this finds you well and enjoying yourself. ann
- At 2:51pm on July 26, 2012, Ann Manzi said…
Hey Carey, so you also had a meningeoma..... me too. It's almost my one year since my craniotomy and then one month of radiation in the winter. I don't consider myself a survivor yet..... I still have seizures and the tumor isn't completely gone and has the chance of growing. I say I survived surgery and radiation and hoping to someday being a survivor. I hope you are doing well. Write if you can. ann
- At 7:43pm on July 23, 2012, Beth Rosenthal said…
Hello Carey and Welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age 11. There was no support for me then, no internet, little family.
Besides connecting with survivors, we can exchange medical information here, get support from survivors like us and connect both on and offline!
There are Q&A’s with a respected neurosurgeon, nutritionist and pain specialist under the Resources tab. Please feel free to submit a question to the Doctors and they will answer!
Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety. Please feel free to start one of your own as well!
Please consider making an annual donation of just $10 for the year to help us with website, social media and other administrative expenses once you see the value from the services provided on IJB.
http://www.itsjustbenign.org/page/thank-you-for-your-taxexempt
Please also check out our fanpage on FaceBook athttps://www.facebook.com/ItsJustBenign & follow us on twitter @itsjustbenign.
Feel free to contact me with any questions or concerns. Thanks again for joining and we look forward to hearing all about you!
Thank you,
Beth
© 2013 Created by Beth Rosenthal.
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