It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Di's Page
Latest Activity
"thanks Di! FYI, I also had a temp lobe oligo. I agree that it is great to "meet" other folks who have experiences similar to ours."
Di left a comment for Phillip"Thanks! It's nice to find a forum for benign brain tumor survivors to collaborate because in the 16 years of my life since my tumor was initially diagnosed, I've never met another brain tumor survivor but have always wondered what other…"
Beth Rosenthal left a comment for Di"Hello Di and thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with…"
Di replied to Jaime's discussion Hippocampus removed?"I had my entire hippocampus removed during one of my craniotomies. I lost approx. 90-95% of my long-term memory as a result. I don't remember my graduation from high school, family vacations, holidays, etc., etc. I guess it'd be easier to…"
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- Temporal lobe oligodendroglioma.
- What kind of info do you want from this site?
- Every day I wake up and tell myself that I'm lucky to have awoken on the right side of the grass; after all, I'm lucky to be alive. I try to remind myself that although life is short, it's meant to be sweet.
- What city & state or city & country are you located in?
- I'd like to read about others' experiences and coping mechanisms (especially in dealing with memory loss).
- How did you find itsjustbenign.org? Please be as specific as possible.
- United States
Comment Wall (3 comments)
- At 5:00pm on April 24, 2010,
Phillip said…
- thanks Di! FYI, I also had a temp lobe oligo. I agree that it is great to "meet" other folks who have experiences similar to ours.
- At 3:03pm on April 24, 2010,
- Hello Di, welcome to IJB
- At 5:57am on April 22, 2010, Beth Rosenthal said…
- Hello Di and thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. Please message me with any questions or comments. Thanks again for joining.
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