"Hi, John, I'm sorry this reply is so late! I just got my computer back.
Thank you for your encouragement :) you're right, sometimes life does feel like a mix of a balancing act and a puzzle (with that one piece that always ends up…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
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Hanna Leigh left a comment for Peggy Orr"Hi Peggy! I'm sorry this is such a late reply, I just got my computer back.
Anyways, thank you for the encouragement, and you're right. Having the right attitude helps a lot, you definately have a great one from what I've read. I hope…"
Lisa commented on Hanna Leigh's blog post Is dizziness normal?"Hi Hanna, I hope this finds you at the very least doing better with the dizziness. All I can draw from is my experience and to tell you since I had my first surgery (2/12/12). My most recent 11/12/13 because of complications.…"
Ann Manzi commented on Hanna Leigh's blog post Ah well."Hanna, Life sure has a way of throwing us a curve ball. Mine was a complete surprise with an emergency craniotomy and thirty days of radiation. I always wonder why, why now; but it I am not in control. Funny, every night I pray for people I…"
John commented on Hanna Leigh's blog post Ah well."Balancing life post-DX is definitely one of the puzzles we all have to figure out. I don't think there's a right answer for everyone and might just depend on our specific situations that we find ourselves in. I try to have the same…"
"Hi Hanna, I'm new to this site, but I wanted to wish you well. You have a very good attitude. I too, have another "squatter" next to my brain stem. This is #3. I don't know about this one, but the others have…"
Beth Rosenthal commented on Hanna Leigh's blog post Ah well."Hi Hanna. I'm sorry about this news. What I've learned from surviving over 25 yrs. post diagnosis is that life just keeps going. Everyone's life moves forward no matter if you're sad, angry, depressed, or happy and soaking in…"
Hanna Leigh posted a blog postAh well.
I had my last MRI on valentine's day, (I love MRI's! No joke, they're a breeze!) to see if radiation shrunk it at all.My NS said it didn't. I'll most likely have this "squatter" for the rest of my life, and it'll probably just keep regrowing reeeeaaally slowly. I might have another surgery later in life, or more radiation or chemo. It could be worse, but I was really hoping it'd leave.I had to leave my last year of high school, and I have to learn to drive again before I start college…See More
Shelby Melton RNS commented on Hanna Leigh's blog post Is dizziness normal?"Hey Hanna Banana! I still have dizzy episodes 2 and a half years after craniotomy. Right temporal lobe. I wake up with headaches and dizziness everyday. Could be medication as well as a lot of other factors. Talk to your neurosurgeon and neurologist…"
John commented on Hanna Leigh's blog post Is dizziness normal?"Hi Hanna, I had my craniotomy (right temporal parietal lobe) in August 2011 and suffered/suffer through dizziness and wooziness spells as well. Things are better now, but it's taken 1.5 years to get to the point I am at now. The dizziness…"
Beth Rosenthal commented on Hanna Leigh's blog post Is dizziness normal?"Hi Hanna. I get dizzy, too. I can't lie on my back, turn certain ways, or hold my head up completely straight. It's really annoying but, I've learned to manage it."
Hanna Leigh posted a blog postIs dizziness normal?
I wanted to ask members of this site if they've ever suffered/are suffering from dizziness AFTER surgery?After my surgery, I get very dizzy looking up or just moving my head too fast...and I can't lie on my back(this might be my fault though, the back thing, I just don't want to try after it hurt the first few times).I'm not sure if it's because it's too soon after surgery-? It was June 25th, is it still soon? Or is it because it was on my brain stem near my cerebellum (where basic motor…See More
Hanna Leigh left a comment for Shelby Melton RNS"Hi Shelby! :) Thank you for your kind words, I hope you're doing okay and have a happy holidays. It's nice when people encourage you, it makes you feel stronger. I'm doing better now, but I can definately feel the fatigue more since…"
Ann Manzi left a comment for Hanna Leigh"Hanna Leigh, This site will help to support and answer your questions. I was diagnosed last August and had an immediate craniotomy and thirty days of fractionated sterotactic radiosurgery. I was able to return to work full time. It has been a…"
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- Pondullar Pilocytic Astrocytoma (I hope I spelled that right)
- What kind of info do you want from this site?
- I just like knowing I'm not alone with this silly lump thing.
- What city & state or city & country are you located in?
- USA
- How did you find itsjustbenign.org? Please be as specific as possible.
- I wanted to see if there were any websites for benign tumors, and if possible, benign brain tumors.
Hanna Leigh's Blog
Ah well.
I had my last MRI on valentine's day, (I love MRI's! No joke, they're a breeze!) to see if radiation shrunk it at all.
My NS said it didn't. I'll most likely have this "squatter" for the rest of my life, and it'll probably just keep regrowing reeeeaaally slowly. I might have another surgery later in life, or more radiation or chemo. It could be worse, but I was really hoping it'd leave.
I had to leave my last year of high school, and I have to learn to drive again before I… Continue
My NS said it didn't. I'll most likely have this "squatter" for the rest of my life, and it'll probably just keep regrowing reeeeaaally slowly. I might have another surgery later in life, or more radiation or chemo. It could be worse, but I was really hoping it'd leave.
I had to leave my last year of high school, and I have to learn to drive again before I… Continue
Posted on February 16, 2013 at 10:53pm — 4 Comments
Is dizziness normal?
I wanted to ask members of this site if they've ever suffered/are suffering from dizziness AFTER surgery?
After my surgery, I get very dizzy looking up or just moving my head too fast...and I can't lie on my back(this might be my fault though, the back thing, I just don't want to try after it hurt the first few times).
I'm not sure if it's because it's too soon after surgery-? It was June 25th, is it still soon? Or is it because it was on my brain stem near my cerebellum (where…
ContinuePosted on December 23, 2012 at 9:11pm — 4 Comments
Comment Wall (2 comments)
- At 6:33pm on December 6, 2012, Ann Manzi said…
Hanna Leigh, This site will help to support and answer your questions. I was diagnosed last August and had an immediate craniotomy and thirty days of fractionated sterotactic radiosurgery. I was able to return to work full time. It has been a journey of ups and downs. I still have seizures for which I have meds, fight daily fatigue, and some deficency of my right hand. Life is different but something that we all have to accept. I feel that we are challenged but have the inner strength to fight. Do take care, ann manzi
- At 5:39pm on December 6, 2012, Beth Rosenthal said…
Hello Hanna and welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age 11. There was no support for me then, no internet, little family.
Besides connecting with survivors, we can exchange medical information here, get support from survivors like us and connect both on and offline!
There are Q&A’s with a respected neurosurgeon, nutritionist and pain specialist under the Resources tab. Please feel free to submit a question to the Doctors and they will answer!
Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety. Please feel free to start one of your own as well!
Please consider making an annual donation of just $10 for the year to help us with the website, social media and other administrative expenses once you see the value from the services provided on IJB. The fee is necessary for the website to continue and new members get a month free! I hope IJB is a valuable resource for you.
Also, feel free to contact me with any questions or concerns. Thanks again for joining and we look forward to hearing all about you!
Thank you,
Beth
© 2013 Created by Beth Rosenthal.
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