"You're very welcome for starting this site. This site has been wonderful for me, too. We all understand about pain and fatigue. I'm sure that there are people from FL online here. Perhaps you can meet. My computer help will be organizing…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Iris Novoa's Discussions
coping with live after meningioma surgery
2 Replies
I know that what I have is nothiing compare to others, I just whant to know if my simtoms are normal or if there is someone out there that had a ningioman pressing the medula oblongata.Continue
Started this discussion. Last reply by Bonnie May 16, 2010.
Iris Novoa's Page
Latest Activity
Tracey Burton left a comment for Iris Novoa"Thank you Novoa.. Ill go check out that book today!! My MRI is friday so im a little stressed out... Im very glad we met!!"
Iris Novoa left a comment for Beth Rosenthal"Hi Beth, thank you for this site. I don't feel alone anymore, everyone expects a lot from me because I look fine, and I had my surgery in 2003, so I'm supposed to be well, and be able to do everithing, but my energy, pain, and exaustion…"
Iris Novoa left a comment for Tracey Burton"Dear Tracey,
I know what you are feeling, but the way I deal with it is called mind control, the only thing that help me, was that wen ever those thoughts come to my mind, I change it for a positive one, specially I think of my self with grand…"
Bonnie replied to Iris Novoa's discussion coping with live after meningioma surgery"Hi again,
I took a look at your page and see some of your symptoms and concerns there. One thing you mentioned is that you do not have insurance. Have you checked into Florida's assistance programs? Have you applied for any of the programs…"
Bonnie replied to Iris Novoa's discussion coping with live after meningioma surgery"Hi Iris,
First, please do not consider your health issues as any less important than any of ours. Having a meningioma brain tumor is a serious health issue - there is no comparison between brain tumors - they occur in many different areas of the…"
Beth Rosenthal left a comment for Iris Novoa"Hello Iris and thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with…"
Iris Novoa replied to Jane Edgell's discussion What is your experience with fatigue and how do you handle it?"Hi, Jane.
I had a meningioma removed November 2003, pressing the medula oblongata between C1 and C2, and I still have neck pain, fatigue, exaustion and dissiness."
Iris Novoa posted a discussioncoping with live after meningioma surgery
I know that what I have is nothiing compare to others, I just whant to know if my simtoms are normal or if there is someone out there that had a ningioman pressing the medula oblongata.See More
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- Meningioma, pressing the medula oblongata
Surgery performed in November 25, 2003
- What kind of info do you want from this site?
- I'm frustrated, because I can only sit in front of the comp. for a few mim. I look well but I have problems with my servical or something, I get a strange feeling of exaustion., also feel that I don't have strength to hold my head and hurts.People don't understand an nither do I. I don;t know what I have. tumor was taken out complettly.
- What city & state or city & country are you located in?
- The Dr. that performed the surgery tells me that everithing is ok, but I would like to know what I can do to feel better. Sometimes I think I should not complain. Just thank God for being alive. But I whant to be able to work. And also I don't have health insurance. Is all this normal? I also know I have a big depression.
- How did you find itsjustbenign.org? Please be as specific as possible.
- Miami, Florida
Comment Wall (3 comments)
- At 10:17pm on May 21, 2010, Beth Rosenthal said…
- You're very welcome for starting this site. This site has been wonderful for me, too. We all understand about pain and fatigue. I'm sure that there are people from FL online here. Perhaps you can meet. My computer help will be organizing members by state soon. That will definitely make a difference. Anyway, have a great weekend.
- At 1:08pm on May 19, 2010, Tracey Burton said…
- Thank you Novoa.. Ill go check out that book today!! My MRI is friday so im a little stressed out... Im very glad we met!!
- At 8:33pm on May 11, 2010, Beth Rosenthal said…
- Hello Iris and thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. Please message me with any questions or comments. Thanks again for joining.
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