It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Jamie Lopez-Idi's Page
Latest Activity
Jamie Lopez-Idi replied to Diana Vu's discussion TRIGEMINAL SCHWANNOMA: anyone out there with the same?"my cranitonomy was a toughie, but I was only 22 and I had a lot of emotional issues involved to, since I had to leave college, and I have vision issues, still have migraines and I can no longer feel my right side of face/head . Its completely numb…"
Jamie Lopez-Idi replied to Diana Vu's discussion TRIGEMINAL SCHWANNOMA: anyone out there with the same?"My Craniotonomy was done by Dr. Chandrenath Sen 212-263-5333 he is at NYU Langone, and Peter Costantino from North Shore LIJ Phone: (212) 787-4379 , and my Gamma Knife was done by Dr. Jeffrey Bruce at Columbia:
Contact…"
Jamie Lopez-Idi replied to Diana Vu's discussion TRIGEMINAL SCHWANNOMA: anyone out there with the same?"Hi Aruna,
I am 31 and I too have a trigeminal tumor and it is also 3.5 and I too have a 3 yr old. I have had the gamma knife done in 2010. It was probably the easiest thing I have done for my tumors thus far. at my 6 month visit, the…"
Diana Vu left a comment for Jamie Lopez-Idi"could you share your gamma knife exp with my mom? she has the exact same tumor..."
Jamie Lopez-Idi replied to LORI A. PAUL's discussion side effects of craniotomy"I live in New York and have had a Craniotonomy. I have a rare Tumor called a trigeminal Neuroma, My tumor was a 5.6 cm mass and I had it at the Surgery Center for Cranial Based surgery in Manhattan based out of St. Lukes Roosevelt. I…"
Jamie Lopez-Idi left a comment for sarah"Hi Sarah,
I too am surviving/survivor of a Trigeminal Neuroma aka trigeminal Schwannoma.Currently I have 3.5cm recurrent mass, which I received Gamma Knife for in Aug 2010. My 6 month check up, a few weeks ago ,showed no increase in growth or…"
Jamie Lopez-Idi commented on Beth Rosenthal's group Depression and anxiety Group"It is so nice to see a page like this.. Hello all if we have never spoken before. I too suffer with the Highs and lows, I am now 3 months post my Gamma Knife surgery for my 2nd tumor, a 3.5cm Trigeminal Neuroma, and next week going in for my first…"
Jamie Lopez-Idi joined Beth Rosenthal's group
Depression and anxiety Group
Suffering from depression, anxiety? Let's get it out. Let's open up and support eachother.
Jamie Lopez-Idi replied to Beth Rosenthal's discussion Infuriated and want your opinion!"Hi beth,
I too agree with you!!! UGH it makes me completely upset that we are not represented well, Let me know how I can help!!!
I was doing the Ride for Research for the past few years until this year. And so far both have made me feel like an…"
Jamie Lopez-Idi left a comment for Linda Wilson"Hi linda,
My name is Jamie, I had and have again, a trigeminal neuroma/meningioma. My first like yours was large aka Grapefruit, I too deal with the prism vision and I completely feel your pain. I currently have a reccurent tumor and as of 7 weeks…"
Beth Rosenthal left a comment for Jamie Lopez-Idi"Hi Jamie! Will you be walking with Team It's Just Benign?"
Jamie Lopez-Idi commented on Kameel Keshav's blog post 3.5cm trigeminal schwannoma removed on 10th of May in South Africa"Hi Kameel,
yes, my entire tumor was removed with the first surgery in 2002, My first one was pressing on my brainstem and needed to be removed ASAP so i had surgery 3 weeks after diagnosis. I was in remission for 4 years when they found a small 1cm…"
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- Trigeminal Neuroma/ Schwannoma
- What kind of info do you want from this site?
- I just had my second surgery, first one was mass craniatonomy and 2 weeks ago, I underwent Gamma knife.
- What city & state or city & country are you located in?
- Support and wondering if anyone else has this type of tumor?
- How did you find itsjustbenign.org? Please be as specific as possible.
- New York
Comment Wall (3 comments)
- At 6:40pm on July 12, 2011, Diana Vu said…
- could you share your gamma knife exp with my mom? she has the exact same tumor...
- At 2:26pm on September 26, 2010, Beth Rosenthal said…
- Hi Jamie! Will you be walking with Team It's Just Benign?
- At 8:25pm on September 1, 2010, Beth Rosenthal said…
- Hello Jamie. Thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. There is also a Q & A with a neurosurgeon under the Resources tab. Thanks again for joining. Feel free to contact me with any questions or concerns.
P.S. I think there is 1 person, maybe two, who as a trigeminal Neuroma. I have trigeminal neuralgia. Do you have it?
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