"my cranitonomy was a toughie, but I was only 22 and I had a lot of emotional issues involved to, since I had to leave college, and I have vision issues, still have migraines and I can no longer feel my right side of face/head . Its completely numb…"
"My Craniotonomy was done by Dr. Chandrenath Sen 212-263-5333 he is at NYU Langone, and Peter Costantino from North Shore LIJ Phone: (212) 787-4379 , and my Gamma Knife was done by Dr. Jeffrey Bruce at Columbia:
I am 31 and I too have a trigeminal tumor and it is also 3.5 and I too have a 3 yr old. I have had the gamma knife done in 2010. It was probably the easiest thing I have done for my tumors thus far. at my 6 month visit, the…"
"I live in New York and have had a Craniotonomy. I have a rare Tumor called a trigeminal Neuroma, My tumor was a 5.6 cm mass and I had it at the Surgery Center for Cranial Based surgery in Manhattan based out of St. Lukes Roosevelt. I…"
I too am surviving/survivor of a Trigeminal Neuroma aka trigeminal Schwannoma.Currently I have 3.5cm recurrent mass, which I received Gamma Knife for in Aug 2010. My 6 month check up, a few weeks ago ,showed no increase in growth or…"
"It is so nice to see a page like this.. Hello all if we have never spoken before. I too suffer with the Highs and lows, I am now 3 months post my Gamma Knife surgery for my 2nd tumor, a 3.5cm Trigeminal Neuroma, and next week going in for my first…"
I too agree with you!!! UGH it makes me completely upset that we are not represented well, Let me know how I can help!!!
I was doing the Ride for Research for the past few years until this year. And so far both have made me feel like an…"
My name is Jamie, I had and have again, a trigeminal neuroma/meningioma. My first like yours was large aka Grapefruit, I too deal with the prism vision and I completely feel your pain. I currently have a reccurent tumor and as of 7 weeks…"
yes, my entire tumor was removed with the first surgery in 2002, My first one was pressing on my brainstem and needed to be removed ASAP so i had surgery 3 weeks after diagnosis. I was in remission for 4 years when they found a small 1cm…"
Hello Jamie. Thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. There is also a Q & A with a neurosurgeon under the Resources tab. Thanks again for joining. Feel free to contact me with any questions or concerns.
P.S. I think there is 1 person, maybe two, who as a trigeminal Neuroma. I have trigeminal neuralgia. Do you have it?