Hi,I am new to this site and would love to hear if anyone has had experience with some of the recovery issues I am facing - mostly with my vision and jaw. Here's my situation:I just had a meningioma…Continue
Started this discussion. Last reply by Beth Rosenthal Sep 8, 2011.
Hello! I see Chamberlain/Graham and they have been incredible! Definitely take your time with work! My first physical therapist who took some of my first steps with me, was also a brain tumor survivor! One of the greatest pieces of advice he gave me was allowing myself equal parts work-rest. If I worked/had therapy for an hour, I had to give myself an hour to rest/recover. I just wanted to get back to my life and that advice made me stop and think about what my body needed (versus what I wanted for me.) Be kind and patient with yourself-you are doing so well!!!!
Hi Jan! I had emergency surgery here and then transitioned my care to the UW (through the Tumor Review Board) soon after! Their team has been amazing! I am so blessed that they see me! I am incredibly impressed that you are up/typing this soon after surgery-you are amazing!
Hello Jan and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. There is a Q & A with a neurosurgeon and a nutritionist under the Resources tab. Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety, etc. Thanks again for joining. Feel free to contact me with any questions or concerns.
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