"Thank you for sharing your story. I have been struggling with dealing with the change in personality that my daughter is having since her surgery and the anti seizure meds. I have been thinking, "why not just wean off the meds so…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
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maria toscano commented on Jess Hill's blog post What it's like to have a grand mal (tonic clonic) seizure"I still have nightmares about that dark place without words. "
Ann Manzi commented on Jess Hill's blog post What it's like to have a grand mal (tonic clonic) seizure"Jess, I think no one knows what your journey was like and the fear you experienced away from home.Being on an airplane with no one that you know and being in a seat wo no other passenger....maybe unreal to the rest of us. I can't imagine your…"
Jess Hill posted a blog postWhat it's like to have a grand mal (tonic clonic) seizure
I wrote this account one week after having a grand mal seizure, and two weeks before having brain surgery to remove the tumor that caused it. The seizure began in my frontal lobe, then generalised and became a tonic-clonic seizure, according to my neurosurgeon. At the time I was still having seizures every few days, and just the act of writing about the first seizure in such detail almost brought on another one. I initially planned to keep this account private, but after two months, I’ve…See More
Beth Rosenthal left a comment for Jess Hill"Hello Jess and welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age…"
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- Astrocytoma Grade 2
- What kind of info do you want from this site?
- What it's like to live with the constant threat of regrowth, the unpredictability of recovery, and the confusing feelings I have around the term 'benign'.
- What city & state or city & country are you located in?
- Beirut, Lebanon and Sydney, Australia
- How did you find itsjustbenign.org? Please be as specific as possible.
- Link from another website about tumors
Jess Hill's Blog
What it's like to have a grand mal (tonic clonic) seizure
I wrote this account one week after having a grand mal seizure, and two weeks before having brain surgery to remove the tumor that caused it. The seizure began in my frontal lobe, then generalised and became a tonic-clonic seizure, according to my neurosurgeon. At the time I was still having seizures every few days, and just the act of writing about the first seizure in such detail almost brought on another one. I initially planned to keep this account private, but after two months, I’ve…
ContinuePosted on February 8, 2013 at 3:00pm — 3 Comments
Comment Wall (1 comment)
- At 2:08pm on February 8, 2013, Beth Rosenthal said…
Hello Jess and welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age 11. There was no support for me then, no internet, little family.
Besides connecting with survivors, we can exchange medical information here, get support from survivors like us and connect both on and offline!
There are Q&A’s with a respected neurosurgeon, nutritionist and pain specialist under the Resources tab. Please feel free to submit a question to the Doctors and they will answer!
Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety. Please feel free to start one of your own as well!
Please consider making an annual donation of just $10 for the year to help us with the website, social media and other administrative expenses once you see the value from the services provided on IJB. The fee is necessary for the website to continue and new members get a month free! I hope IJB is a valuable resource for you.
Also, feel free to contact me with any questions or concerns. Thanks again for joining and we look forward to hearing all about you!
Thank you,
Beth
© 2013 Created by Beth Rosenthal.
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