"I went to a ENT today to have vestibular testing done. The lady who performed the test said that I definately had something going on when I was on my left side or when she blew air in my left ear. She also mention I had some down beating nystagmus.…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Jessica McKinney's Discussions
First Appt with Neuro-Oncologist
I had my first appt with my neuro-oncologist today. I thought it went very well, I felt that she connected with me and really took her time to explain everything to me. So as you can imagine she has…Continue
Started Sep 22, 2010
its likely benign, but still scared
4 Replies
I have been diagnosed with a cervicomedullary brain lesion. My symptoms are headaches, N/V and sharp shock like facial pain. I seen a neurosurgeon and since the lesion has not grown in 3months, he…Continue
Started this discussion. Last reply by Jessica McKinney Sep 16, 2010.
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Jessica McKinney replied to Beth Rosenthal's discussion Additions to IJB? Your opinions, please!"The part I enjoy the most is other peoples stroies and interations with each other. Its nice to see the support and to see what others have been through that I might have to go through.
I personally am looking forward to seeing this website…"
Jessica McKinney posted a discussionFirst Appt with Neuro-Oncologist
I had my first appt with my neuro-oncologist today. I thought it went very well, I felt that she connected with me and really took her time to explain everything to me. So as you can imagine she has ordered quite of few test that will be done over the next couple of weeks. She is also taking my case to the Brain tumor board which is a group of 8 neuro specialist at KU medical center in KS, that will review my images and my records and then colaborate a plan for me. Because of the location she…See More
Jessica McKinney replied to Jessica McKinney's discussion its likely benign, but still scared"Thanks Becky, for being positive even though you are going through a lot yourself. Sounds like all is going pretty well for you and I will keep you in my thoughts and prayers that all will good news :) "
Becky replied to Jessica McKinney's discussion its likely benign, but still scared"Hello Jessica. I don't know any ways not to know for sure what it is without a biopsy, though a lot of the time doctors can tell based on growth-rate (or lack of) and the way it looks on an MRI. Depending on what the tumor is made of (e.i.…"
Jessica McKinney left a comment for Beth Rosenthal"I stumbled upon your website today and felt a great relief. I have been searching the web for 3 months trying to find info. I didn't know where to turn because the neurosurgeon keeps telling me he is are pretty sure its bening becuase it did…"
Jessica McKinney replied to Jessica McKinney's discussion its likely benign, but still scared"Thanks Rebecca, it is nice to hear from someone that has been through it. For some reason I feel a strong pull to not just let this rest, something keeps telling me that not doing something is not the right path. The neurologist I seen today agreed…"
Beth Rosenthal left a comment for Jessica McKinney"Hello Jessica. Thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with…"
Jessica McKinney posted a discussionits likely benign, but still scared
I have been diagnosed with a cervicomedullary brain lesion. My symptoms are headaches, N/V and sharp shock like facial pain. I seen a neurosurgeon and since the lesion has not grown in 3months, he thinks it would be best to wait and see approach. My concerns with this is that we do not know exactly what this lesion is, I have requested a second opinion with a neurosurgeon that specializes in Brain tumors, I am currently still waiting to hear when that appt will be. I guess my question would be…See More
Jessica McKinney commented on Beth Rosenthal's page Q & A by NS Dr. Danish, MD"I have been diagnosed with a cervicomedullary brain lesion. My symptoms are headaches, N/V and sharp shock like facial pain. I seen a neurosurgeon and since the lesion has not grown in 3months, he thinks it would be best to wait and see. My concerns…"
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- low grade brainstem glioma
- What kind of info do you want from this site?
- feeling very scared, even though they are telling me they think it is benign.
- What state or country are you located in?
- support and further information on brain stem gliomas
- How did you find itsjustbenign.org? Please be as specific as possible.
- Missouri
Comment Wall (1 comment)
- At 12:47pm on September 15, 2010, Beth Rosenthal said…
- Hello Jessica. Thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. There is also a Q & A with a neurosurgeon under the Resources tab and a nutritionist will be answering questions very soon. Thanks again for joining. Feel free to contact me with any questions or concerns.
P.S. I have trigeminal neuralgia. Is that the pain you have?
© 2012 Created by Beth Rosenthal.
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