"You can get a virtual second opinion from Cleveland clinic, by sending scans and records to them. The brain neurosurgeons are at the Brain Tumor and Neuro-oncology Center. their website has links to this. I also believe UPMC in Pittsburgh does…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Jessica Millerd's Discussions
brainstem tumor
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I have a benign brainstem tumor diagnosed 10 months ago and was also diagnosed with Crohn's disease all in the same month. I have a wonderful compassionate neurologist, but he says I have no surgical…Continue
Started this discussion. Last reply by Mary Bedford Jul 18, 2012.
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Jessica Millerd replied to Jessica Millerd's discussion brainstem tumor"John,
Thanks for your response. No I did not know that. Thanks for letting me know. I took my father to his neurosurgeon recently and he was kind enough to pull my MRI up in his office. He told me he feels like I have MS even though my spinal tap…"
John replied to Jessica Millerd's discussion brainstem tumor"Hi Jessica. What type of insurance do you have? It seems like you have an HMO? If you have a PPO, you can go to anyone without a referral. My apologies if you know that already.
Regardless of what type of insurance you have, I believe you can always…"
Beth Rosenthal left a comment for Jessica Millerd"Hello Jessica and Welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age…"
Jessica Millerd posted a discussionbrainstem tumor
I have a benign brainstem tumor diagnosed 10 months ago and was also diagnosed with Crohn's disease all in the same month. I have a wonderful compassionate neurologist, but he says I have no surgical options because of the location of the tumor, but I believe I do have options as I've read comments on here. I am not the only one suffering, my family is as well because of what these diseases are doing to me. I have right sided weakness, pain throughout, visual disturbances and eye pain as well…See More
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- Brainstem glioma
- What kind of info do you want from this site?
- Nonsurgical options like radiotherapy and gamma knife, recommendations of recommended hospitals who can help me. One of my docs has recommended Cleveland Clinic or one of the Mayo Clinics but they are all so far away. I would like a location closer to Bryant, AR as I have a son with severe disabilities and a daughter w/medical problems.
- What city & state or city & country are you located in?
- Arkansas
- How did you find itsjustbenign.org? Please be as specific as possible.
- searching online
Comment Wall (1 comment)
- At 7:08pm on July 12, 2012, Beth Rosenthal said…
Hello Jessica and Welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age 11. There was no support for me then, no internet, little family.
Besides connecting with survivors, we can exchange medical information here, get support from survivors like us and connect both on and offline!
There are Q&A’s with a respected neurosurgeon, nutritionist and pain specialist under the Resources tab. Please feel free to submit a question to the Doctors and they will answer!
Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety. Please feel free to start one of your own as well!
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http://www.itsjustbenign.org/page/thank-you-for-your-taxexempt
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Feel free to contact me with any questions or concerns. Thanks again for joining and we look forward to hearing all about you!
Thank you,
Beth
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