"Hi Misti, I just tried calling you back but not sure if I dialed the right number. Meaning every time I call you I get an immediate busy signal. Can you call me again at 770-888-4340. I am located in GA EST. Would love to catch-up."
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Karolin's Discussions
Meningioma Side Effects - Did any of you experience these types of symptoms
27 Replies
Hello All,I am wondering if any of you had a similar experience and what to expect.I have been diagnosed with a benign tumor 1 year ago in February. I felt a strange sensation in my head and…Continue
Started this discussion. Last reply by Karolin Mar 20.
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Karolin replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"Wow! That sounds amazing. I used to do a class of Healing with Energy back when I used to live in Amsterdam. The class teaches how to read the Aura but honestly I was never lucky enough to see colors. I have no idea if it is your tumor, physical…"
Misti McCarley replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"I am sorry you guys but I have to share thismight be TMI...As we know, I have been very lonely lately, almost to the point of emotional dust. I had to opportunity to be loved last night (not the three letter word) and it was the most awesome,…"
Misti McCarley replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"Thanks for continuing to keep me in your thoughts. I am glad I have a little time to get things sorted out. I'm getting a trusted person to pay my bills with access to my bank account for when my disability check goes in (VERY TRUSTED 15 year…"
Pamela Bishoff replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"That is good news. Possible light at the end of tunnel for you. All the waiting and wondering has to be so scary. Even though physically your life has been hell the anxiety of the unknown is just as bad. I am kinda glad…"
Misti McCarley replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"Just to let u guys know docs office called and scheduled surgery two weeks out because he has to be somewhere but I don't want anyone touching me but him especially after he did my spinal cord he's an excellent surgeon still have a lot to…"
Misti McCarley replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"I use psyllium seed husk whole and Red Mill Wheat Bran (Health food store is where I get it), applesauce (organic--anykind will do, might even want to make own, and prune juice with honey to taste. Mix it all to the amount that you want to mix…"
Pamela Bishoff replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"WOW! You have been and still are on quite a challenging physical health journey. But from what you just told me there may be light at the end of the tunnel. I can't imagine how scary it must be, but quality of life is so…"
Pamela Bishoff replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"Hi Misti,
You can vent, discuss any time you want. That is why we are here. Tell me more about your tumor. Are the possible side effects of removing it truly worse then the quality of life you are currently living? It sounds as…"
Pamela Bishoff replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"Similar to you my tumor was located in the area of the right parietal lobe. Prior to removal I had weakness on my left side, which I noticed when I tried to lift a pan from the stove that I had been sauting veggies in. I still no longer can…"
Alice B. Guarino replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"HI Misty,
My thoughts and prayers are with you as you move on to the next step in your journey. It sounds like you are ready and comfortable with your decision. Good luck and God bless. I will keep looking for your posts.
Alice"
Karolin replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"Thank you for responding. If you can please keep me posted but if this is causing you pain then don't. Kopf hoch!"
Misti McCarley replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"Im sure theres a post for it somewhere I just wanted to respond to you so you didnt think I fell off the face of the earth. I totally closed everything down, my facebook etc totally withdrawn. Thanks for the healing lve...you too.
Misti"
Karolin replied to Karolin's discussion Meningioma Side Effects - Did any of you experience these types of symptoms"That is terrible I completely understand that you want it out.
However iam not the one who had surgery. Should I open a separate post for you? I would like to make sure that everyone is reading this.
Please let us know if there is anything we can do…"
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- Meningioma
- What kind of info do you want from this site?
- want to know if anyone had issues with Panic discorder/seizure medication/and what the long time side effects are of removal/also looking for holistic approaches such as boswellia
- What city & state or city & country are you located in?
- Georgia
- How did you find itsjustbenign.org? Please be as specific as possible.
- internet via google engine typing in support group for benign brain tumor
Comment Wall (1 comment)
- At 7:56pm on February 5, 2013,
Beth Rosenthal said… Hello Karolin and welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age 11. There was no support for me then, no internet, little family.
Besides connecting with survivors, we can exchange medical information here, get support from survivors like us and connect both on and offline!
There are Q&A’s with a respected neurosurgeon, nutritionist and pain specialist under the Resources tab. Please feel free to submit a question to the Doctors and they will answer!
Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety. Please feel free to start one of your own as well!
Please consider making an annual donation of just $10 for the year to help us with the website, social media and other administrative expenses once you see the value from the services provided on IJB. The fee is necessary for the website to continue and new members get a month free! I hope IJB is a valuable resource for you.
Also, feel free to contact me with any questions or concerns. Thanks again for joining and we look forward to hearing all about you!
Thank you,
Beth
© 2013 Created by Beth Rosenthal.
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