It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Lisa Orloff's Discussions
Two years later...I am new to this site; appreciate your thoughts...
Hello fellow survivors,My two year anniversary following brain surgery is coming up in October. I have a follow up neuro appointment this week regarding two symptoms which leads me to two questions…Continue
Started Aug 12, 2011
Lisa Orloff's Page
Latest Activity
Christine left a comment for Lisa Orloff"Thanks, Lisa. It is encouraging to hear other people's experiences.
Christine"
Lisa Orloff commented on Beth Rosenthal's page Q & A by NS Dr. Danish, MD"Question: I had a left temporal ganglioglioma removed October 2009. The clicking sound has returned, which I was told should stop about a year after my surgery, as it was brain surgery/craniotomy side effects related to healing. The sound went away…"
Beth Rosenthal left a comment for Lisa Orloff"Hello Lisa and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors,…"
Lisa Orloff left a comment for Christine"Hi Christine,
I am a left temporal lobe brain surgery survivor, surgery 2 years ago in October. I asked your questions many times before my surgery and got a lot of different answers. The best way to think about it, is how you are defining…"
Lisa Orloff posted a discussionTwo years later...I am new to this site; appreciate your thoughts...
Hello fellow survivors,My two year anniversary following brain surgery is coming up in October. I have a follow up neuro appointment this week regarding two symptoms which leads me to two questions for this group: I am still hearing clicking inside my ear? head? I saw on this site that this is "normal" as the brain is healing...is it okay that it's still going on almost two years later? I am also experiencing very odd instances where i have a memory and visions and words pop into my head, it is…See More
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- ganglioglioma left temporal
- What kind of info do you want from this site?
- hear other people's stories, resources, support
- What state or country are you located in?
- New Jersey
- How did you find itsjustbenign.org? Please be as specific as possible.
- asked google a question about a side effect i am experiencing and found the answer on your site.
Comment Wall (2 comments)
- At 7:00am on August 15, 2011, Christine said…
Thanks, Lisa. It is encouraging to hear other people's experiences.
Christine
- At 1:25am on August 13, 2011, Beth Rosenthal said…
- Hello Lisa and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. There is a Q & A with a neurosurgeon and a nutritionist under the Resources tab. Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety, etc. Thanks again for joining. Feel free to contact me with any questions or concerns.
© 2012 Created by Beth Rosenthal.
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