"My email is marksears32@gmail.com"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Lisa Orloff's Discussions
Two years later...I am new to this site; appreciate your thoughts...
Hello fellow survivors,My two year anniversary following brain surgery is coming up in October. I have a follow up neuro appointment this week regarding two symptoms which leads me to two questions…Continue
Started Aug 12, 2011
Lisa Orloff's Page
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MarkSears left a comment for Lisa Orloff"Lisa,
I tried to email you and it came back rejected . I would love to hear about your experience ! I am freaked out and insight is at such a premium! Email me or if you feel comfortable call me (314)249-5862. I am desperate need of info.
Thanks…"
Lisa Orloff left a comment for MarkSears"Mark, email me at lima.airlft@gmail.com and we'll talk about my positive experience. --Lisa"
MarkSears left a comment for Lisa Orloff"Lisa,
Hopefully you get this message. My name is Mark Sears, my son Brandon (age15) just had a ganglioglioma Grade 1 removed 2 months ago. The Dr.s say it was comp,teeny resected but I continue to worry for him! Any insight you could share would be…"
Christine left a comment for Lisa Orloff"Thanks, Lisa. It is encouraging to hear other people's experiences.
Christine"
Lisa Orloff commented on Beth Rosenthal's page Q & A by NS Dr. Danish, MD"Question: I had a left temporal ganglioglioma removed October 2009. The clicking sound has returned, which I was told should stop about a year after my surgery, as it was brain surgery/craniotomy side effects related to healing. The sound went away…"
Beth Rosenthal left a comment for Lisa Orloff"Hello Lisa and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors,…"
Lisa Orloff left a comment for Christine"Hi Christine,
I am a left temporal lobe brain surgery survivor, surgery 2 years ago in October. I asked your questions many times before my surgery and got a lot of different answers. The best way to think about it, is how you are defining…"
Lisa Orloff posted a discussionTwo years later...I am new to this site; appreciate your thoughts...
Hello fellow survivors,My two year anniversary following brain surgery is coming up in October. I have a follow up neuro appointment this week regarding two symptoms which leads me to two questions for this group: I am still hearing clicking inside my ear? head? I saw on this site that this is "normal" as the brain is healing...is it okay that it's still going on almost two years later? I am also experiencing very odd instances where i have a memory and visions and words pop into my head, it is…See More
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- ganglioglioma left temporal
- What kind of info do you want from this site?
- hear other people's stories, resources, support
- What city & state or city & country are you located in?
- New Jersey
- How did you find itsjustbenign.org? Please be as specific as possible.
- asked google a question about a side effect i am experiencing and found the answer on your site.
Comment Wall (5 comments)
- At 7:24pm on January 3, 2013, MarkSears said…
- My email is marksears32@gmail.com
- At 6:35pm on January 3, 2013, MarkSears said…
- Lisa,
I tried to email you and it came back rejected . I would love to hear about your experience ! I am freaked out and insight is at such a premium! Email me or if you feel comfortable call me (314)249-5862. I am desperate need of info.
Thanks sooooo much!
Mark
- At 11:32pm on January 2, 2013, MarkSears said…
- Lisa,
Hopefully you get this message. My name is Mark Sears, my son Brandon (age15) just had a ganglioglioma Grade 1 removed 2 months ago. The Dr.s say it was comp,teeny resected but I continue to worry for him! Any insight you could share would be most appreciated...
Thank you
- At 7:00am on August 15, 2011, Christine said…
Thanks, Lisa. It is encouraging to hear other people's experiences.
Christine
- At 1:25am on August 13, 2011, Beth Rosenthal said…
- Hello Lisa and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. There is a Q & A with a neurosurgeon and a nutritionist under the Resources tab. Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety, etc. Thanks again for joining. Feel free to contact me with any questions or concerns.
© 2013 Created by Beth Rosenthal.
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