"Hi Michelle! i've had the pituitary adenoma for 13 years now. It disappeared entirely and then came back, so this is the 2nd time around for me. my thyroid counts are normal and so are the other hormones, which i"m really happy about.…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
M Robbins's Page
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M Robbins left a comment for leah Rapoport"Hi Leah!
Thanks! This is all confusing right now. I do have a pituitary tumor. However, the adrenal gland tests came back negative. I still have the tightness in the face, plus a little nausea and headaches. I go to the…"
leah Rapoport left a comment for M Robbins"Hi Michelle! i also have a pituitary tumor and live in ny. welcome!
"
Beth Rosenthal left a comment for M Robbins"Hello Michelle and Welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age…"
M Robbins replied to Beth Rosenthal's discussion The irony in my religion & other groups"Beth, I am sorry that you experienced this. In the little time I have known that I have a pituitary gland tumor I have found that when you mention that the tumor is benign, people confuse it with "it's not that serious because it…"
M Robbins replied to Beth Rosenthal's discussion Who are you?"Well, Kasi, I feel your pain. What I have been telling people since this time is that you have to be your own best advocate! If I hadn't insisted that I be evaluated, I would have gone home not knowing about the tumor.
Michelle"
M Robbins replied to Beth Rosenthal's discussion Who are you?"Hello Everyone:
My name is Michelle and I was just diagnosed with a tumor on the pituitary gland on June 20, 2012. The PA said I had a glioma, but the endocrinologist also said that I have something called Partial Empty Cella…"
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- Pituitary Gland Tumor. They said I have something called Glioma, but I am confused. The endo also said that I have Empty Sella syndrome
- What kind of info do you want from this site?
- support mostly
- What city & state or city & country are you located in?
- New York
- How did you find itsjustbenign.org? Please be as specific as possible.
Comment Wall (3 comments)
- At 8:57pm on July 14, 2012, leah Rapoport said…
Hi Michelle! i've had the pituitary adenoma for 13 years now. It disappeared entirely and then came back, so this is the 2nd time around for me. my thyroid counts are normal and so are the other hormones, which i"m really happy about. i'm glad your thyroid is normal and you have your appts relatively soon, so you can find out what is wrong. Feel free to ask me other stuff you might want to know, it sounds like you are newly diagnosed, so you probably have a lot of questions.
Hugs!!! Leah
- At 10:23pm on July 12, 2012, leah Rapoport said…
Hi Michelle! i also have a pituitary tumor and live in ny. welcome!
- At 11:19pm on July 10, 2012, Beth Rosenthal said…
Hello Michelle and Welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age 11. There was no support for me then, no internet, little family.
Besides connecting with survivors, we can exchange medical information here, get support from survivors like us and connect both on and offline!
There are Q&A’s with a respected neurosurgeon, nutritionist and pain specialist under the Resources tab. Please feel free to submit a question to the Doctors and they will answer!
Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety. Please feel free to start one of your own as well!
Please consider making an annual donation of just $10 for the year to help us with website, social media and other administrative expenses once you see the value from the services provided on IJB.
http://www.itsjustbenign.org/page/thank-you-for-your-taxexempt
Please also check out our fanpage on FaceBook athttps://www.facebook.com/ItsJustBenign & follow us on twitter @itsjustbenign.
Feel free to contact me with any questions or concerns. Thanks again for joining and we look forward to hearing all about you!
Thank you,
Beth
© 2013 Created by Beth Rosenthal.
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