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Sue,
Thank you so much for the response! I am glad to hear that things went pretty well. When you say sooner than later you hit on exactly what I am currently struggling with. I am not sure what that means, I want to avoid surgery and…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Matthew David Craig's Page
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Matthew David Craig replied to Diana Vu's discussion TRIGEMINAL SCHWANNOMA: anyone out there with the same?Matthew David Craig posted a blog postTrigeminal Schwannoma
I am glad to have found other people with the same diagnosis. I have a 2.8 CM Trigeminal Schwannoma lightly pushing in to my brainstem. Right now I have some facial numbness/tingling on the left side that fluctuates depending on a lot of things. It seems like the more stressed I am, the worse it is. It has been recommended that I have stereo-tactice radio-therapy. I recently started a new job as a teacher and live in Oklahoma City, home of Procure. The issue I am having is that I don't feel as…See More
Beth Rosenthal left a comment for Matthew David Craig"Hello Matthew and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with…"
Matthew David Craig replied to Diana Vu's discussion TRIGEMINAL SCHWANNOMA: anyone out there with the same?"I was diagnosed with one about 6 months ago. I have been told it is benign and is 2.8 cm (yikes!). I actually found it by accidenet, I didn't know I had it! Long story short a kid popped a cap gun in my ear causing horrible distortion in my…"
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- Trigeminal Schwannoma
- What kind of info do you want from this site?
- Support, advice, community
- What city & state or city & country are you located in?
- Oklahoma
- How did you find itsjustbenign.org? Please be as specific as possible.
- Google!
Matthew David Craig's Blog
Trigeminal Schwannoma
I am glad to have found other people with the same diagnosis. I have a 2.8 CM Trigeminal Schwannoma lightly pushing in to my brainstem. Right now I have some facial numbness/tingling on the left side that fluctuates depending on a lot of things. It seems like the more stressed I am, the worse it is. It has been recommended that I have stereo-tactice radio-therapy. I recently started a new job as a teacher and live in Oklahoma City, home of Procure. The issue I am having is that I don't feel…
ContinuePosted on August 9, 2011 at 6:57pm
Comment Wall (1 comment)
- At 12:57pm on August 5, 2011, Beth Rosenthal said…
- Hello Matthew and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. There is a Q & A with a neurosurgeon and a nutritionist under the Resources tab. Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety, etc. Thanks again for joining. Feel free to contact me with any questions or concerns.
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