Nikita Volkova
  • Female
  • Vancouver
  • Canada
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  • Amanda
  • Beth Rosenthal

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Latest Activity

Amanda and Nikita Volkova are now friends
Feb 19, 2012
Nikita Volkova posted a blog post

Results are in

The tumour is still there, but has not grown. Follow up MRI in November.Gee...thanks.And what about the fact I have Nystagmus, Oscillopsia and Ataxia to keep the Migraines company? "Get a cane because if you fell and hit your head, your brain could bleed." does not address the other issues. I've got a cane. It's ugly, and it's stupid and all I want to do is hit people with it. "Oh, that's good news" Someone with a malignant tumour has people proactivly addressing the issues. Those of us with…See More
Feb 17, 2012
Beth Rosenthal left a comment for Nikita Volkova
"Hello Nikita and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with…"
Jan 28, 2012
Amanda left a comment for Nikita Volkova
"Hi Nikita! I read what you are hoping to gain from this site and I want you to know that you can make it through this, moment by moment, and still maintain some sanity. I know you must be scared and overwhelmed. I am almost four-years post-op and it…"
Jan 28, 2012
Nikita Volkova updated their profile
Jan 28, 2012
Nikita Volkova joined Beth Rosenthal's group
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Seizures

Area to discuss your seizures and hopefully treatment options will be discussed..
Jan 28, 2012
Nikita Volkova joined Beth Rosenthal's group
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Migraines

Area to discuss your migraines and to help each other with treatment options.
Jan 28, 2012
Nikita Volkova joined Beth Rosenthal's group
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Depression and anxiety Group

Suffering from depression, anxiety? Let's get it out. Let's open up and support eachother.
Jan 28, 2012
Nikita Volkova is now a member of It's Just Benign
Jan 28, 2012

Profile Information

Who are you?
Survivor
What type of tumor do/did you have?
Still unknown
What kind of info do you want from this site?
I want to know how people do this day in and day out and not lose their minds.
What city & state or city & country are you located in?
Canada
How did you find itsjustbenign.org? Please be as specific as possible.
google

Comment Wall (2 comments)

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At 10:51pm on January 28, 2012, Beth Rosenthal said…

Hello Nikita and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. There is a Q & A with a neurosurgeon and a nutritionist under the Resources tab. Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety, etc. Thanks again for joining. Feel free to contact me with any questions or concern

At 10:51pm on January 28, 2012, Amanda said…
Hi Nikita! I read what you are hoping to gain from this site and I want you to know that you can make it through this, moment by moment, and still maintain some sanity. I know you must be scared and overwhelmed. I am almost four-years post-op and it does get better, I promise. You are stronger than you can even imagine and the body is built to heal. Please message me if you have any questions or you just need to vent. You are not alone, I promise! Amanda

Nikita Volkova's Blog

Results are in

The tumour is still there, but has not grown. Follow up MRI in November.

Gee...thanks.

And what about the fact I have Nystagmus, Oscillopsia and Ataxia to keep the Migraines company? "Get a cane because if you fell and hit your head, your brain could bleed." does not address the other issues. I've got a cane. It's ugly, and it's stupid and all I want to do is hit people with it. "Oh, that's good news" Someone with a malignant tumour has people proactivly…

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Posted on February 17, 2012 at 3:49am — 1 Comment

 
 
 

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