"Over the course of ten years i had six surgeries for a stubborn craniopharyngioma. Because it was situated on the optic nerve and carotid artery they were always afraid to get too close and therefore kept leaving some of the tumor in, which then…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
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Penny Harrison's Discussions
Dylans Tumor
2 Replies
The MRI of the regrowth of Dylan's tumor showed no change in six months, so now they are going to check him in one year. I would much prefer every six months, but neuro says a year. Thank you for…Continue
Started this discussion. Last reply by Penny Harrison Jun 19, 2011.
Prayers for Dylan
5 Replies
My grandson, Dylan, will have a six month MRI next Friday, June 3rd. His first year MRI that was done in November, and showed some possible regrowth. Please join me in prayer for Dylan. I know…Continue
Started this discussion. Last reply by Penny Harrison May 30, 2011.
More Than One Surgery
6 Replies
Has anyone had more than one brain surgery for his/her tumor?
Started this discussion. Last reply by moshe kaluszyner Dec 4, 2011.
ganglioglioma regrowth
3 Replies
A year ago, my grandson had a ganglioglioma removed. At that time, the surgeon said he got all he could see. This week my daughter got a call from his recent MRI and while they said the MRI was…Continue
Started this discussion. Last reply by Penny Harrison Nov 30, 2010.
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Ida replied to Penny Harrison's discussion More Than One Surgery"Mine was growing very slowly, after 4 years it showed possible regrowth and after 7 years they called me after mri because of recurrence. At that time i had pain in my legs (it was in my spine) But it was still a shock and I was having surgery two…"
Penny Harrison replied to Penny Harrison's discussion Dylans Tumor"Thank you, You will be in my prayers also. I know tha tAugust is fast approaching."
Amanda replied to Penny Harrison's discussion Dylans Tumor"I am so glad to hear that his MRI showed no change-congratulations! I completely understand being scared about the longer intervals between scans-I always have to remind myself that its progress! I am at eight-month intervals now, with my next one…"
Penny Harrison posted a discussionDylans Tumor
The MRI of the regrowth of Dylan's tumor showed no change in six months, so now they are going to check him in one year. I would much prefer every six months, but neuro says a year. Thank you for all your prayers and support. I love this board and pray for all of you. See More
Penny Harrison replied to Penny Harrison's discussion Prayers for Dylan"Thank you for sharing. I pray for Dylan "without ceasing." I am his intercessor and I am so thankful for your sharing these two scriptures. There is no distance in prayer and I appreciate your prayers. "
April Lloyd replied to Penny Harrison's discussion Prayers for Dylan"Dylan will be in my prayers!!!!"
Amanda replied to Penny Harrison's discussion Prayers for Dylan"I have a couple "mantras" I say during MRIs, tests and meetings with my team. The first is Psalm 32:7 "You are a hiding place for me; You, Lord, preserve me from harm and surround me with songs of deliverance." I just picture Him…"
christine replied to Penny Harrison's discussion Prayers for Dylan"He will be in my thoughts and prayers...."
Penny Harrison posted a discussionPrayers for Dylan
My grandson, Dylan, will have a six month MRI next Friday, June 3rd. His first year MRI that was done in November, and showed some possible regrowth. Please join me in prayer for Dylan. I know that many on this board are in the same situation and know how important prayer is. We know there is POWER in Prayer and Praise!
Penny Harrison replied to Judy Garner Ortiz's discussion Thankful for this site!!"Did your friend's tumor grow back malignant? I have read a benign tumor can change and grow back malignant."
Penny Harrison replied to Penny Harrison's discussion More Than One Surgery"He had a very hard time with his first surgery. He has still not gone back to school. He is doing OK, but the trauma was bad. He is very thin. I am concerned , but your story is encouraging. "
Ralph Hill replied to Penny Harrison's discussion More Than One Surgery"Yup,
I had two consecutive OPs in 2001 (wednesday morning, thursday morning) and a third a couple of years later and the last one in '07. The first set they tried out neuro-navigation, but because the software was still relatively new, it…"
Penny Harrison replied to Penny Harrison's discussion More Than One Surgery"Thank you for responding. Dylan's was ganglioma in the speech and retention center. It has been 17 months, but he showed possible regrowth at his one year MRI. Did yours only show after the seven years? Or did it grow…"
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- Who are you?
- Family
- What type of tumor do/did you have?
- It is my grandson and I am not sure what kind. Waiting for an answer
- What kind of info do you want from this site?
- It has been hard on me as a grandmother and very hard on him
- What city & state or city & country are you located in?
- I want some information to help him
- How did you find itsjustbenign.org? Please be as specific as possible.
- USA
Comment Wall (7 comments)
- At 9:57pm on November 27, 2010,
Sarah Clark said… - My tumor was in my left frontal lobe right near my speech.Was quite big too measuring 6.5cm x 3.1 cm x 2.6 cm. I had out June 09. My latest MRI still showing high flair signal which Neuro wants to keep a very close eye on as he is unsure whether it is scar tissue or residual tumor. I have been having my MRI's every 6 months and was hoping to have my scans further apart but I am back again in April for another one now, which I am thankful for as I would prefer to be on top of things if it ends up being tumor.
How often does Dylan have his MRI's?
It is worrying for a slow growing tumor isn't it. Was his graded a grade I or grade II Ganglioglioma do you know? Mine was graded II as I had some unusual atypical cells.
- At 4:06pm on November 27, 2010, Sarah Clark said…
- Yeah I wasn't offered any treatment post op either they are apparently saving it in case in recurs. I did not have any seizures as symptoms, my only symptoms were migraines, nausea and dizziness.
Funny you mention the hit to the head your grandson had well not funny but a coincidence I had a hit to my head on the opposite side to my tumor and I had a hematoma between the skull and the skin that had to be drained but obviously not in the brain itself. I have mentioned this accident to the Neuro and he feels it is in no way related. I was 14 when I had the car accident and I was 31 when they found this tumor.
- At 4:08am on November 27, 2010, Sarah Clark said…
- Hi Penny, Did your grandson have any treatment post op i.e radiation?
- At 11:24pm on October 30, 2010,
Beth Rosenthal said… - Hi Penny. Thank you for the donation. I really appreciate it and it helps out with the expenses. I'll add your name to the Donations tab.
- At 8:12pm on June 1, 2010, Beth Rosenthal said…
- I started a kid's group. Check it out. Maybe your grandson will participate. It's under the resources tab.
- At 9:30pm on March 2, 2010,
Wendy Felsenthal said… - Hi Penny!
I'm glad you are doing what you can to find out any info you can for both yourself and your grandson.
You will find many people here who, if don't know an answer, can point you in the direction you need to be heading AND they also have alot of experience so are able to help you deal w/ symptoms and or stresors.
How old is your grandson?
One site I found that had a ton of info is abta.org and a book that was a good help and very helpful for a caregiver of a child w/ a brain tumor is called Childhood Brain & Spinal Cord Tumors A Guide for Families, Friends and Caregivers written by Tania Shiminski-Maher, Patsy Cullen and maria Sansalone. I HIGHLY recommend the book as an excellent source of info to have w/ you for refernce plus it has lots of very useful everyday info that parents need to know that will help them w/ their journey and make their child's journey more 'bearable'.....
- At 9:25pm on March 2, 2010, Beth Rosenthal said…
- Hello Penny and thanks for joining. I started this site a year ago because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. Please message me with any questions or comments. Thanks again for joining.
© 2013 Created by Beth Rosenthal.
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