It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
Tammy Darrow's Page
Latest Activity
Tammy Darrow posted a status"We are at John Hopkins today - Joe is having a MRI to check for changes in the tumor. These days unnerve me!"
Todd Koonce left a comment for Tammy Darrow"Hi Tammy, sorry to hear about your husbands health situation. I know he very much apprecieates your support- speaking from having the support of my family, when I had my brain surgeries. Hopefully is situation is improving- I will pray…"
Tammy Darrow posted a status"My husband has had three brain surgeries and three strokes...we get little info on what we should expect recovery-wise. ::sighs::"
Luke Brown left a comment for Tammy Darrow"Tammy,
Thank you for responding. I do not know where you are or the problems that your husband may be having. I trust the surgery was successful (or as successful as possible). As you have found out, there is a great deal of…"
Tammy Darrow left a comment for Luke Brown"We were originally told that my husband had an acoustic neuroma....but it ended up being a petroclival meningioma."
Beth Rosenthal left a comment for Tammy Darrow"Hello Tammy and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors,…"
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Comment Wall (3 comments)
- At 10:17pm on August 3, 2011, Todd Koonce said…
Hi Tammy, sorry to hear about your husbands health situation. I know he very much apprecieates your support- speaking from having the support of my family, when I had my brain surgeries. Hopefully is situation is improving- I will pray that it is. On a different note, I'm sure your husband takes some medications,(which can be expensive), I wanted to let you know that I came across a site that offers a Free card, which has some Very good discounts on a 'number' of medications- my Lamotrigine is Less than $30, instead of $300. The site is: www.prrxcut.com/mnc00086 All you'll need to do, is pring the card. Hopefully this helps.
- At 7:53pm on August 3, 2011, Luke Brown said…
Tammy,
Thank you for responding. I do not know where you are or the problems that your husband may be having. I trust the surgery was successful (or as successful as possible). As you have found out, there is a great deal of fallout from the surgery-oftentimes more than from the tumor itself.
If you/your husband would like more information about some of the outgrowths of the surgery and what to expect during recovery, I's be happy to help.
- At 1:46pm on July 12, 2011, Beth Rosenthal said…
- Hello Tammy and welcome. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. There is a Q & A with a neurosurgeon and a nutritionist under the Resources tab. Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety, etc. Thanks again for joining. Feel free to contact me with any questions or concerns.
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