"I don't know if this info is of any use to anyone, but I had my first meningioma discovered (and removed) in 1987. In 1990, I had a hysterectomy and chemo for a very rare form of uterine cancer called endolymphatic stromomyosis.…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
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Tricia Taylor commented on Tricia Taylor's blog post hormones/breast cancer/meningioma connection"thanks for the info! Tricia"
cynthia walsh commented on Tricia Taylor's blog post hormones/breast cancer/meningioma connection"My husband has a meningioma and has seizures. Would like to talk with someone in the same situation. Thanks"
Lauren Jager commented on Tricia Taylor's blog post Where do I go for the best surgery?"Hi Tricia,
I don't know if you found a surgeon yet, but PLEASE check Dr. Philip Gutin at Sloane Kettering in NYC. I didn't check what state you are in, but he is worth the trip. I had my surgery 2 years ago and I know at that time he was…"
Bonnie commented on Tricia Taylor's blog post hormones/breast cancer/meningioma connection"Follow up - not sure that my memory was all that accurate in my previous post. : ) I have copied snipets of info from various sources below, fyi:
http://www.brain-surgery.com/mening.html
As mentioned earlier in the Primer, each type of brain tumor…"
Bonnie commented on Tricia Taylor's blog post hormones/breast cancer/meningioma connection"Hi Tricia - I think the key is: those who get breast cancer or who are at a greater risk, have breast tissue which contains estrogen receptors. As a result of estrogen in the body (especially the extra estrogen from BC pills or being pregnant) the…"
Tricia Taylor commented on Tricia Taylor's blog post hormones/breast cancer/meningioma connection"Thanks, Bonnie. I, too had seen Anne McGinnis' website and that is why I was asking the group about mifepristone. I had also googled for articles but not seen anything about the use of the drug for meningiomas...that's when I deceided to…"
Bonnie commented on Tricia Taylor's blog post hormones/breast cancer/meningioma connection"Hi Tricia
I’ve read about meningiomas and use of mifepristone on another meningioma support web site and on the following blog –…"
Tricia Taylor posted a blog posthormones/breast cancer/meningioma connection
Does anyone know of any good website or doctor who might know about the hormone, breast cancer and meningioma connection? Most sites I have seen are where someone with breast cancer gets a meningioma, but I have a meningioma and BIG family history of breast cancer. I am 55 and have never taken HRT, but apparently HRT can stimulate both. From what I have read, hormones are a big issue. I really don't want to take a drug, but I want to learn mroe about mifepristone and an or any other information…See More
Tricia Taylor commented on Tricia Taylor's blog post Where do I go for the best surgery?"Thanks, Wendy. I will check out Vanderbilt. I have been to Gastonia! --cute little town. I moved to western NC 3 eyars ago form GA...love it here in the mountains."
Tricia Taylor commented on Tricia Taylor's blog post Where do I go for the best surgery?"Thanks to everyone for your comments!"
Wendy Felsenthal commented on Tricia Taylor's blog post Where do I go for the best surgery?"You aren't too far from Nashville being in NC! I used to live just outside and south of Charlotte for awhile in a little town called Gastonia. Beautiful state!"
Wendy Felsenthal commented on Tricia Taylor's blog post Where do I go for the best surgery?"Vanderbilt is where both my son and I went. The doctor's name is Reid Thompson. Here is the link below. They are a brain tumor center and teaching hospital. Excellent , excellent care and very well respected. He welcomes patients wanting…"
Tricia Taylor commented on Tricia Taylor's blog post Where do I go for the best surgery?"Thanks, Phillip. I should try Duke; it does have a good name. Its an 8 hr drive... My in-laws live near John Hopkins, so I will go there. I want to get 3 opinions. glad to hear your good news...what has been the worst part for you? --how was the…"
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- I was just diagnoised with a left anterior frontal lobe meningioma.
- What kind of info do you want from this site?
- I'm ok.
- What city & state or city & country are you located in?
- I would like to talk with someone who has the same type tumor, hopefully in the frontal lobe.
- How did you find itsjustbenign.org? Please be as specific as possible.
- North Carolina
Tricia Taylor's Blog
hormones/breast cancer/meningioma connection
Does anyone know of any good website or doctor who might know about the hormone, breast cancer and meningioma connection? Most sites I have seen are where someone with breast cancer gets a meningioma, but I have a meningioma and BIG family history of breast cancer. I am 55 and have never taken HRT, but apparently HRT can stimulate both. From what I have read, hormones are a big issue. I really don't want to take a drug, but I want to learn mroe about mifepristone and an or any other information… Continue
Posted on April 15, 2010 at 3:41pm — 7 Comments
Where do I go for the best surgery?
I was diagnosed 3 weeks ago with a left anterior frontal meningioma. I want to seek a 2nd or even third opinion. I live in a small town and am underwhelmed with the doctor I went to.
I wish I knew who specialized in this particular type of meningioma and could speak with someone in the group who had such a surgery.
I will travel out of state...I have the "luxury" of waiting, as I was told I have no symptoms (although I beg to differ!). Any guidance would be greatly appreciated. Tricia
I wish I knew who specialized in this particular type of meningioma and could speak with someone in the group who had such a surgery.
I will travel out of state...I have the "luxury" of waiting, as I was told I have no symptoms (although I beg to differ!). Any guidance would be greatly appreciated. Tricia
Posted on March 31, 2010 at 12:20pm — 7 Comments
Comment Wall (2 comments)
- At 1:10pm on March 31, 2010,
Virginia Tupper said… - I also have the luxury of waiting -- I look at it as the time to try alternatives which will hopefully keep the M from growing and causing anything more than my daily headaches and chronic neck pain. I have acupuncture each week, far infrared sauna, Unda drops and I've just sprouted some Wheatgrass which when grown I plan to juice and drink. Lots of interesting information about Wheatgrass online -- whether it will help me with this M or not I won't know till I try. Are you trying anything alternative while you wait?
- At 1:10am on March 30, 2010,
Beth Rosenthal said… - Hello Tricia and thanks for joining. I started this site a year ago because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. Please message me with any questions or comments. Thanks again for joining.
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