"Hi, my son, Isaac, was diagnosed with Juvenile Pilocytic Astrocytoma in January 2006 just before he turned 7 years old. His tumor was in the hypothalamus/optic chaism region. After a biopsy, he started chemo (carboplatin/vincristine).…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
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Wendy Felsenthal
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- Memphis, TN
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Wendy Felsenthal's Discussions
Migraine Headaches
6 Replies
Started this discussion. Last reply by Wendy Felsenthal Apr 10, 2010.
(( Happy Veterans Day))
1 Reply
Started this discussion. Last reply by Bonnie Nov 11, 2009.
Wendy Felsenthal's Page
Latest Activity
Karen Hatfield replied to Wendy Felsenthal's discussion Howdy Folks in the group Parent's of diagnosed children
Wendy Felsenthal replied to Jan Gelman's discussion Eye and Jaw problems after surgery"Hi Jan!
Im glad you are doing better!
I had the same sugery for the same thing basically....only on my right temporal lobe , behind my eye.
I had droopy eye feeling for probably a year or more, but it waned. I still get it....the feeling that…"
Wendy Felsenthal replied to Beth Rosenthal's discussion Overcoming Anger"Beth-
You are allowed to be angry. We all get that way, for a variety of other reasons as well. We feel cheated out of something and feel like we are owed.
The problem w/ anger is that it festers. Anger is anxiety/disappointment that is never dealt…"
Wendy Felsenthal replied to Becky's discussion Experienced my first seizure"Hi Karrie- Getting ready for bed now, but wanted to drop you a line and say that I have the same type of sensations that are seizures but sometimes present as panic feelings. My tumor was in my right temporal lobe, in the sphenoid wing region. I am…"
Wendy Felsenthal commented on Betsy Macdonald's blog post Andrew's Survival"Thank Gd! Yay! I am so happy to hear such uplifting and positive news:)"
Wendy Felsenthal left a comment for Beth Rosenthal"Thank You Beth:)
Hope you are spending Thanksgiving w/ family and that you enjoy your time w/ them!
I couldn't figure out for the life of me what you were talking about when you wrote that you liked the fruit shopping list! It dawned on me a…"
Beth Rosenthal left a comment for Wendy Felsenthal"Hi Wendy. I sent out the shirts. Thank you so much for your donation. I added your name under the Donation tab. Let me know if that's a problem. Also, I like your fruits & veggies shopping list."
Wendy Felsenthal replied to Amanda's discussion Falling apart...."Ralph----you crack me up.
I always look forward to your straight -shooting way of looking at things:)
Been awhile folks-Been in my rabbit hole for awhile.
Keep up the good work and words everyone!
"
Wendy Felsenthal commented on Beth Rosenthal's page Q&A Kathryn A. Allen, MA"Question: What are your thoughts regarding the hormone issue in foods, such as soy foods and the use of growth hormones in cows?
Answer: Hormones are used in animals to increase muscle mass and increase milk production; however, these hormones do…"
Karen left a comment for Wendy Felsenthal"Hi to all!..it's been a yr and a month now, done with my 1yr post op follow up, mri is still clear, will do it again in 6 mos. they're not doing any radiation at all until they see something (..nice!). Still no vision with my right eye,…"
Wendy Felsenthal commented on Marie Welsh's blog post Long term affects of childhood brain tumor"Hi Marie,
I can totally relate.Is that a picture of both of you-You both look fabulous!
My son was diagnosed w/ a brain tumor in his left frontal lobe when he was 12- we watched it for growth w/ MRI's every 6 months until , when at the age of…"
Wendy Felsenthal commented on Lisa Turner's blog post one month after surgery and feeling worried!"Hi Kiddo- I'm so sorry you are going through all of that. I wish I had seen this sooner:(
I echo Bonnie's comments below.
When I was taken off of the Dex, it was done over a three- week time frame. I think I was on it for 6 weeks all…"
Wendy Felsenthal added a discussion to the group Parent's of diagnosed children
Howdy Folks
My son was diagnosed w/ a brain tumor when he was 12. It was watched via MRI's every 6 months, until at the age of 17, it was shown to have doubled in size almost, so it was removed at Vanderbilt in Nashville, TN on Januray 31st 2008. He had a grade II astrocytoma removed from his left frontal lobe. While it was still in his brain it did some damage by just being there. When it grew it did more. he is now going to be 20 in August, and I am happy to say he is doing much better, although he will…See More
Wendy Felsenthal joined Beth Rosenthal's groupParent's of diagnosed children
This group is designed for the parent's of children who are diagnosed with a benign brain tumor. Connect to other parents here and discuss your experience and help your child stay as intact and emotionally well-off as possible.
Profile Information
- Who are you?
- Survivor, Family, Friend, Supporter
- What type of tumor do/did you have?
- I had a meningioma in my right temporal lobe....right behind my eye.
- What kind of info do you want from this site?
- Well, had it not been for the fact that my son had a brain tumor removed a year prior to mine( Jan.2008 -astrocytoma-frontal lobe), and my dad having a meningioma as well, I would be off my rocker...As it is I'm only 1/2 way off my rocker:)
I have a blog that I try to keep up on and its:
http://wendyfels.blogspot.com/
- What city & state or city & country are you located in?
- Just support/understanding from and for others who have gone through the same or similar issues.
- How did you find itsjustbenign.org? Please be as specific as possible.
- I'm in Memphis TN
My Personal Blog Site -Memphis On My Mind
Wendy Felsenthal's Blog
One Year MRI
Tomorrow aftrnoon I am getting my post surgery MRI( 1 year , even though one year would be middle of April:)).
I wasn't even thinking about it really until my son came over for dinner tonight after class, and I brought it up to him. It then hit me....
The last couple of months have been pretty good and I'd like to keep it that way. I don't want any surprises...Know what I mean(s) jelly bean(s)? :)
Posted on February 25, 2010 at 7:15pm — 7 Comments
Anyone w/ Periphial Nerve Issues?
Was wondering if anyone had any issues w/ sensations in arms and/or legs after surgery(or even before for that matter).
I was diagnosed w/ Raynaud's before I even had a brain tumor, but after its removal, my arms, but mainly my legs, feel worse. My feet feel cold all the time. Like they are freezing and my calves feel weaker and more 'numb' for lack of a better term. They ache a bit too.
For those of you who may wonder what Raynaud's is, here is a link for info…
Continue
I was diagnosed w/ Raynaud's before I even had a brain tumor, but after its removal, my arms, but mainly my legs, feel worse. My feet feel cold all the time. Like they are freezing and my calves feel weaker and more 'numb' for lack of a better term. They ache a bit too.
For those of you who may wonder what Raynaud's is, here is a link for info…
Continue
Posted on September 10, 2009 at 1:51pm — 7 Comments
Comment Wall (84 comments)
- At 11:34pm on November 17, 2010, Beth Rosenthal said…
- Hi Wendy. I sent out the shirts. Thank you so much for your donation. I added your name under the Donation tab. Let me know if that's a problem. Also, I like your fruits & veggies shopping list.
- At 9:51am on August 9, 2010, Karen said…
- Hi to all!..it's been a yr and a month now, done with my 1yr post op follow up, mri is still clear, will do it again in 6 mos. they're not doing any radiation at all until they see something (..nice!). Still no vision with my right eye, but getting use to it and i started driving again...yey. didn't have any seizure at all, i don't know if i'm ever gonna have one, or does anyone have the same issue and then had seizure...Any plans on having a reunion out here in Vegas...let me know i can coordinate.
- At 11:38pm on June 26, 2010, Beth Rosenthal said…
- Hi Wendy. I hope that you're doing well. I was having so many health problems the last few weeks. I have a scratch on my cornea that's not healing and my trigeminal neuralgia pain has been horrible. Both are related to the trigeminal nerve and are b/c of the tumor. I'm finally doing better and am back in the land of the living.
Anyway, in welcoming Thomas, I saw on his page a note from you saying that you have relatives in NJ. I sure hope that we'll meet too if come here. Maybe you and your son can come to the walk. I hope at some point that we all meet. It will happen.
Anyway, thinking of you.
- At 5:45pm on June 26, 2010, Thomas W Banford said…
- Oh ,,,Let Me Add,,,
I Did Autobody For 40 Years And Contribute It To Chemical Exposure.
- At 5:43pm on June 26, 2010, Thomas W Banford said…
- How Wendy,,
My Tumor Was In The Same Spot. Above The Right Eye Where The Forehead Stops & Top Of The Head Starts. . I'm Now Low Visioned in the left eye But It Put The Righjt Eye Out. Stargest Thing.. I Have Trouble Walking On Cement Not Ashphault. I Live In Long Valley N.J.. Cant Drive And Thats The Biggest Drawback But Live A Normal Life. One Month Hospital One Month Rehab For Balance & On My Own Since. Great Nuero ,But Not Much Of a Scalp Guy. & As He Says,,What Do You Want You Should Be Dead. . The "Tom Rule",,,"You Dont Gotta Like It,But,You Do Gotta Take It"
- At 11:30pm on April 27, 2010,
Russell Infinger said… - Wendy,
I just had my 14th of 28 treatments today. So far it is going better than I expected.
I'm the Operations Director at a Civic Center. It is more of a challenge to do my job now, but it is something that I just have to work through.
- At 10:39pm on April 19, 2010, Russell Infinger said…
- Hi Wendy,
I mostly have issues with coordination and strength in my right side. Also some short term memory loss. I'm currently in the middle of radiation treatments and I have noticed these issues becoming more severe in the last few days.
- At 5:20pm on April 6, 2010, cheri dolezal said…
- Hi Wendy,
"Fresh" is right! They did not get it all - optic nerve sheath meningioma left along with tumor around carotid artery. Optic Nerve tumor has continued to cause some double vision and depth perception problems. Radiation will start in June darn!
- At 4:58am on March 29, 2010,
Javi said… - Hi Wendy,
Thanks for providing some insight in the discussion. I am confused ha. First the NS at Mayo questions the biopsy. Then, he expresses he's not sure if treatment would do anything in terms of growth/prognosis. And now most docs think my symptoms (even my visual disturbances) are not related!!! ah
I have a meeting at Sloan Kettering, then probably John Hopkins/Duke. What do you think is the best way to contact Dr. Reid. Email or phone? I sure hope he isn't as wishy washy as this last Dr.! Thanks for the support.
- At 7:38am on March 27, 2010,
Bonnie said… - Hi Wendy! : )
Enjoy getting outdoors & doing some planting this weekend. I can't wait for the weather here to be flower ready. Tom's Greenhouse/Farmstand (my fav) opens Monday - want to go gaze at the flowers and dream..... Have great weekend! ((HUGS))...Bonnie
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