It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
darcie clark's Page
Latest Activity
Beth Rosenthal left a comment for darcie clark"Hello Darcie and welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age…"
Ann Manzi left a comment for darcie clark"Darcie, Thanks for your email. It sounds like your surgery removed all of your bt; certainly hope so. My craniotomy was August of 2011 with 60% removed and then a month of radiation. A long story, but another time. I think as time passes…"
darcie clark posted a status"Just wanted to say Hi to everyone and thanks for letting me join your group"
Ann Manzi left a comment for darcie clark"Darcie, You reached a great site for stories, support and a place to share. Not sure if you had a craniotomy or the size is small and have a wait and see with mri's. We are different with our stories, and where we are on our…"
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- planum sphenoidale meningioma
- What kind of info do you want from this site?
- any
- What city & state or city & country are you located in?
- england
- How did you find itsjustbenign.org? Please be as specific as possible.
- sites for just benign brain tumours
- *** It's Just Benign is a public site. Only members can participate on IJB but, it's fully searchable on search engines. ***Please note that your membership will not be approved if you don't fill out the application in full detail. Enter your initials to continue. Thank you.
- dc
Comment Wall (3 comments)
- At 9:17pm on March 7, 2013, Beth Rosenthal said…
Hello Darcie and welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age 11. There was no support for me then, no internet, little family.
Besides connecting with survivors, we can exchange medical information here, get support from survivors like us and connect both on and offline!
There are Q&A’s with a respected neurosurgeon, nutritionist and pain specialist under the Resources tab. Please feel free to submit a question to the Doctors and they will answer!
Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety. Please feel free to start one of your own as well!
Please consider making an annual donation of just $10 or more for the year to help us with the website, social media and other administrative expenses once you see the value from the services provided on IJB. The fee is necessary for the website to continue and new members get a month free! I hope IJB is a valuable resource for you.
Remember to set your privacy settings with whatever your comfortable with.
Also, feel free to contact me with any questions or concerns. Thanks again for joining and we look forward to hearing all about you!
Thank you,
Beth
- At 7:51pm on March 7, 2013, Ann Manzi said…
Darcie, Thanks for your email. It sounds like your surgery removed all of your bt; certainly hope so. My craniotomy was August of 2011 with 60% removed and then a month of radiation. A long story, but another time. I think as time passes by, others don't necessarily ask about our situation. In my case, everyone says I look great but they said that when I was wearing a wig..... I could go on and on about inappropiate remarks; but I don't take it seriously. I don't think that everyone can understand our journey but we have that in comman. I just tell people, I appreciate there concern and I am okay; it relieves them about this subject. We have this in comman and support each other and have ears to listen. Hope you can have your questions about your tumor. I always ask lots of questions. I agree that I live from mri to mri. I do think about the what ifs; but try not to let this bt define me (it just likes my accomadations). Hope to hear from you soon. ann manzi
- At 8:29pm on March 5, 2013, Ann Manzi said…
Darcie, You reached a great site for stories, support and a place to share. Not sure if you had a craniotomy or the size is small and have a wait and see with mri's. We are different with our stories, and where we are on our journey. What I know is from brochures. You should be able to get info from your ns. You can google meningeoma"s, hospital sites which will help with info. Hope you research helps you better understand this tumor, size, diagnosis, typical or atypical, stage etc. Do take care, ann manzi
© 2013 Created by Beth Rosenthal.
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