"hi indy.saw your 'who am i' and i too am a pit tumor patient. currently growing number two. lets talk sometime."
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
indy's Discussions
newly diagnosed, been through the ringer- any tips?
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Hello All,I hope someone can help answer some of my questions, or at least offer some reassurance. I was recently diagnosed with a pituitary tumor; they are still doing lab work to determine what…Continue
Started this discussion. Last reply by Misti McCarley Mar 7.
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Misti McCarley replied to indy's discussion newly diagnosed, been through the ringer- any tips?"I am sad to read that you have had such a horrible time. I am glad however that you have a husband who cares. I wonder too what I could have ever done to be dealt such a hand, and then I see someone with no legs in a wheel chair. The thing is that…"
indy replied to indy's discussion newly diagnosed, been through the ringer- any tips?"Thank you. I met briefly with the surgeon today. Even though it is a macroadenoma they don't want to remove it at this time. It measures 9mm tr x 8mm ap x 12mm cc. I'm going to get a second opinion just to feel better. The mri states that:…"
Reni replied to indy's discussion newly diagnosed, been through the ringer- any tips?"Hello Indy,
Your "novel" broke my heart, you have alredy been through so much.
It sounds like you've got a great understanding of what's going on with your condition, I'm hoping you have a good support team (family,…"
indy posted a discussionnewly diagnosed, been through the ringer- any tips?
Hello All,I hope someone can help answer some of my questions, or at least offer some reassurance. I was recently diagnosed with a pituitary tumor; they are still doing lab work to determine what kind it is. So far all the hormone studies have been normal, except for DHEA-S. And I had the ACTH stress test after that to test my adrenals, and that test was normal. I see the neurosurgeon and neuro-endocrine doctors tomorrow. So, a little about me: I was born with a congenital heart defect,…See More
indy replied to Beth Rosenthal's discussion Who are you?"Hello all I go by Indy ;). Just diagnosed with a mass in the pituitary region... some say that's not the same as a brain tumor but mine is causing neuro issues. I have only so far been told it's a mass that has had a bleed. Consistent with…"
Beth Rosenthal left a comment for indy"Hello Indy and welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age…"
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- Pituitary macroadeoma
- What kind of info do you want from this site?
- Support
- What city & state or city & country are you located in?
- Wisconsin usa
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- I. M.
Comment Wall (2 comments)
- At 5:07am on March 14, 2013,
BrandiS said… - hi indy.saw your 'who am i' and i too am a pit tumor patient. currently growing number two. lets talk sometime.
- At 7:40pm on February 28, 2013, Beth Rosenthal said…
Hello Indy and welcome to It's Just Benign!
I started IJB because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long-term survivor (but have many side-effects), diagnosed in 1985 at age 11. There was no support for me then, no internet, little family.
Besides connecting with survivors, we can exchange medical information here, get support from survivors like us and connect both on and offline!
There are Q&A’s with a respected neurosurgeon, nutritionist and pain specialist under the Resources tab. Please feel free to submit a question to the Doctors and they will answer!
Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety. Please feel free to start one of your own as well!
Please consider making an annual donation of just $10 or more for the year to help us with the website, social media and other administrative expenses once you see the value from the services provided on IJB. The fee is necessary for the website to continue and new members get a month free! I hope IJB is a valuable resource for you.
Also, feel free to contact me with any questions or concerns. Thanks again for joining and we look forward to hearing all about you!
Thank you,
Beth
© 2013 Created by Beth Rosenthal.
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