my son had a central neuro cytoma total resection 9/06 to date no signs of regrowth. he developed hydrocephalus and now has a vp shunt in place. he has some short time memory loss and the left side…Continue
Started this discussion. Last reply by Amanda Mar 19, 2011.
Hello Joe and thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. There is also a Q & A with a neurosurgeon and a nutritionist under the Resources tab. Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety, etc. It's Just Benign now has its own store. All proceeds help maintain this website. So if you shop online, shop through our "store" tab link. There are over 20 stores. Thanks again for joining. Feel free to contact me with any questions or concerns.
P.S. What radio station mentioned IJB? Also, how old is your son? One of my missions is to help children diagnosed with benign brain tumors. I'm always available to talk if he wants to speak with a childhood survivor.
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