joe vereline's Discussions

my son
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 my son had a central neuro cytoma total resection 9/06 to date no signs of regrowth. he developed hydrocephalus and now has a vp shunt in place. he has some short time memory loss and the left side…Continue

Started this discussion. Last reply by Amanda Mar 19, 2011.

 

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Amanda replied to joe vereline's discussion my son
"Hello Joe, So sorry to hear about your son's complications-this journey seems to be ever-changing. Has his team ever recommended pursuing services with a Speech-Language Pathologist? Their scope of practice covers…"
Mar 19, 2011
joe vereline posted a discussion

my son

 my son had a central neuro cytoma total resection 9/06 to date no signs of regrowth. he developed hydrocephalus and now has a vp shunt in place. he has some short time memory loss and the left side of his brain activity is slower than the right. I am looking for the best ways to help him in his recovery. any advise? thanksSee More
Mar 18, 2011
Beth Rosenthal left a comment for joe vereline
"Hello Joe and thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with…"
Mar 16, 2011
joe vereline commented on Beth Rosenthal's page Q & A by NS Dr. Danish, MD
"my son had a central neuro cytoma total resection 9/06 to date no signs of regrowth. he developed hydrocephalus and now has a vp shunt in place. he has some short time memory loss and the left side of his brain activity is slower than the…"
Mar 15, 2011
joe vereline is now a member of It's Just Benign
Mar 15, 2011

Profile Information

Who are you?
Family
What type of tumor do/did you have?
central neuro cytoma
What kind of info do you want from this site?
resources
What state or country are you located in?
ny
How did you find itsjustbenign.org? Please be as specific as possible.
radio

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At 6:04am on March 16, 2011, Beth Rosenthal said…

Hello Joe and thanks for joining. I started this site because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor (but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. There is also a Q & A with a neurosurgeon and a nutritionist under the Resources tab. Also there are many different groups such as religious discussions, migraines, seizures, depression and anxiety, etc. It's Just Benign now has its own store. All proceeds help maintain this website. So if you shop online, shop through our "store" tab link. There are over 20 stores. Thanks again for joining. Feel free to contact me with any questions or concerns.

P.S. What radio station mentioned IJB? Also, how old is your son? One of my missions is to help children diagnosed with benign brain tumors. I'm always available to talk if he wants to speak with a childhood survivor.

 
 
 

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