"I have noticed that a lot of stress will trigger things off. One of the biggest loss I feel is control over my life, feel like I am just rolling along waiting or the next shoe to drop. Now just the other day a buddy of mine who works at the Fire…"
It's Just Benign: Connecting Benign Brain Tumor Survivors Everywhere
maria toscano's Groups
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Cognitive Issues
6 members
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Childhood Survivors, Now…
8 members
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Depression and anxiety G…
29 members
maria toscano's Page
Latest Activity
Beth Rosenthal commented on maria toscano's group Cognitive Issues"oops! here not, hear. I hate spelling errors.
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Beth Rosenthal commented on maria toscano's group Cognitive Issues"Paul, congrats on 3 years. I never heard people celebrating their cranaversaries before, until hear. It's 26 yrs. for me."
Beth Rosenthal commented on maria toscano's group Cognitive Issues"It's very difficult to move on, for me anyway. The side-effects are constant reminders: for me it's my left sided weakness, motor skills loss, hearing loss & chronic pain. It's not as bad as a stroke but, like that and with…"
Paul Gerrard commented on maria toscano's group Cognitive Issues"It' coming up on 3 years now since my surgery, there are times when I think, wow I'm doing much better. Maybe I can get over this and move on, only to have a scar across my head to remind me. Then comes the headaches and the feeling of not…"
Mary Bedford replied to maria toscano's discussion Headaches in the group Cognitive Issues"I have these headaches too. I find that I process things much slower compared to before surgery(10/11). And the struggle to find words at times most frustrating. the acceptance of the new normal is hard: headaches, seizures, mental changes..…"
Mary Bedford joined maria toscano's group
Cognitive Issues
Hi! I am starting this group because I would like to find others to relate to who also have cognitive issues left over from their brain tumors, medication or surgeries. I have a great deal of trouble mentally processing information. Everyone thinks I'm normal but I get nausious almost everyday and have headaches and often feel worried about saying or doing the wrong thing.See More
Beth Rosenthal joined maria toscano's groupCognitive Issues
Hi! I am starting this group because I would like to find others to relate to who also have cognitive issues left over from their brain tumors, medication or surgeries. I have a great deal of trouble mentally processing information. Everyone thinks I'm normal but I get nausious almost everyday and have headaches and often feel worried about saying or doing the wrong thing.See More
Paul Gerrard joined maria toscano's groupCognitive Issues
Hi! I am starting this group because I would like to find others to relate to who also have cognitive issues left over from their brain tumors, medication or surgeries. I have a great deal of trouble mentally processing information. Everyone thinks I'm normal but I get nausious almost everyday and have headaches and often feel worried about saying or doing the wrong thing.See More
John commented on maria toscano's blog post Trying to be strong"Hey Maria, take your time. Glad you're feeling a bit better."
"Hello everybody,
I just wanted to thank you for your comments and incouragement. I'm sorry I've been away a bit. I've been pretty busy with school and haven't been able to get away to comment on here. I think…"
Judi Downing joined maria toscano's groupCognitive Issues
Hi! I am starting this group because I would like to find others to relate to who also have cognitive issues left over from their brain tumors, medication or surgeries. I have a great deal of trouble mentally processing information. Everyone thinks I'm normal but I get nausious almost everyday and have headaches and often feel worried about saying or doing the wrong thing.See More
John commented on maria toscano's blog post thoughts on aphasia and existentialism"I meant upside "down," that I'm going off an upside down version of it."
"I just wikipedia'd it. It is an interesting concept. What do you mean upside version?"
John commented on maria toscano's blog post thoughts on aphasia and existentialism"I was wondering if anyone's come across Maslow's hierarchy of needs? If you have, sometimes, I feel like I am going with an upside version of it."
Profile Information
- Who are you?
- Survivor
- What type of tumor do/did you have?
- ganglioglioma type 1 in left parietal lobe
- What kind of info do you want from this site?
- support, health information
- What state or country are you located in?
- texas
- How did you find itsjustbenign.org? Please be as specific as possible.
- searching the web for cancer information
Maria toscano's Blog
Trying to be strong
Well the whole things really a long story but last year I tried to go down on my siezure meds so I wouldn't be so tired all the time at work and school but because they are also mood stabilizers I started to have very bad panic attacks and became scared to do normal things like eat and drive and go to work and school. I basically ruined my academic record which was painful and was just totally messed up for a while. I have had panic attacks since my brain surgeries but those were the…
ContinuePosted on March 2, 2012 at 11:24pm — 6 Comments
Claire totally gets me
I was watching Heroes the other day and I felt like I could relate to Claire in her conversation with Sylar :
[ "I like to think of myself as just a girl who happens to have this power. It’s just one thing in a list of attributes : loyal, friendly, regenerative, good skin but when you put the chips down and life gets tough, I hide behind that one label, that one attribute and I close myself off...I use my specialness to build these walls." ]
I think I really do the same thing…
ContinuePosted on February 22, 2012 at 9:36pm — 2 Comments
thoughts on aphasia and existentialism
I posted this in my cognitive issues goup but I thought it was fitting for my blog as well :
Right now I'm in a french existentialism class and I feel like I relate strongly to Jean Paul Sartre in Nausea. One of the great themes in his book is that language is a thin veneer that separates us from the real world and that when one understands this it is at the same time liberating and nauseating. With all the speech aphasia issues I have had I feel like…
Posted on February 17, 2012 at 2:16pm — 14 Comments
some additional info.
I thought I'd add a bit of medical history for those interested. I had siezures around 12 or 13 and was diagnosed at 14. My last surgery was when I was 18. I probably should have had more MRIs but I haven't had one in like 10 years because of financial difficulty.(additionally my mom is a nurse and said there wasnt really a reason for an MRI unless I had symptoms) I am however scheduling one now and crossing my fingers!
Posted on February 17, 2012 at 12:01pm — 1 Comment
Comment Wall (1 comment)
- At 8:44am on February 17, 2012,
Ed said… Maria,
Welcome aboard, I'm kinda new here as well. Ask away and you should get advice from someone.
Ed
© 2012 Created by Beth Rosenthal.
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