Hi, my name is Kelly and I'm 4 months post op from 10 hr brain surgery to try and debulk part of my Meningioma. They were able to remove some of the bottom half but had to leave a "carpet" due to it being attached to the 4th cranial nerve. There is also a portion of the tumour that is inoperable. I speak to a radiation oncologist on tues in regards to dealing with that. I suffer from double vision because of damage to the nerve, I can't drive and am having a hard time with feeling like…Continue
I am a 37 year mother of two who suffered with headaches for years. Last year on April 20, 2012 I was sent for a brain MRI where they discovered a golf ball size tumor in my left temporal lobe. Literally three weeks before I went for the MRI was when my headaches changed to a localized pain on the top of my head that only felt relief when applying pressure to the top of my head. The tumor was pushing on the midline of my brain and they doctors were amazed I was not having seizures. Following…Continue
Added by Kelly Lee on May 2, 2013 at 7:37pm — No Comments
I just found this site for benign brain tumors. I had a meningioma removed in January, 2013. I am now back at work after a pretty uneventful recovery. I did have some issues in the ICU with hallucinations and such. But my memory is still pretty good, my sense of smell returned, and I have even lost weight.
My tumor was found after I fell while visiting family. I was a little tipsy after some wine, and fell off the bed. I ended up with a very swollen head, and 2 black eyes.…Continue
Added by Norma Trent on April 28, 2013 at 11:31am — No Comments
Hi everyone! I'm also new here. I just wanted to know if anyone noticed any changes going on with memory, moods, balance and family members since the removal of their tumor.
It will be two years in August that I had a menigioma tumor removed. They didn't remove all of it because it was attached to my sinuses and damage could of occurred. I did, however, have an MRI done recently and they said that it looks like its shrinking.
I'm having problems with…Continue
As I am new to this, I am not sure exactly what to post so I will just simply give my story...
August of 2011 I had an MRI because I was having vision problems. I was driving and I started seeing things as if I were looking through a fish bowl. All watery/wavy. And was experiencing dizziness as well as a headache. I thought it was a migraine of sorts. I guess NOT
Well..because I got no results after numerous calls to my MD. I went in for a regular check up just before…Continue
I guess I have graduated from this website. Andrew's tumor is now officially malignant. He has few options. One is temozolmide to prolong his life but not to cure. We have had a shock for sure but are ok at the moment. He have been fighting a good fight for 16 years. My husband is an amazing man.
I wrote this account one week after having a grand mal seizure, and two weeks before having brain surgery to remove the tumor that caused it. The seizure began in my frontal lobe, then generalised and became a tonic-clonic seizure, according to my neurosurgeon. At the time I was still having seizures every few days, and just the act of writing about the first seizure in such detail almost brought on another one. I initially planned to keep this account private, but after two months, I’ve…Continue
Memory has been an interesting issue for me following a temporal lobectomy hat laso removed most of my right hippocampus to remove a tumor. David Levintin wrote a reamable piece about a friend with a tumor ond the relationship of memory tosense of self. Here's an interview with him ....
The Self That's Left When Memories Fade
January 24, 2013 ... Read Daniel Levitin's Atlantic piece "Amnesia and the Self That Remains When Memory Is Lost.". Our memories and experiences…
I wanted to ask members of this site if they've ever suffered/are suffering from dizziness AFTER surgery?
After my surgery, I get very dizzy looking up or just moving my head too fast...and I can't lie on my back(this might be my fault though, the back thing, I just don't want to try after it hurt the first few times).
I'm not sure if it's because it's too soon after surgery-? It was June 25th, is it still soon? Or is it because it was on my brain stem near my cerebellum (where…Continue
I think I am emotionally tough, and can accept the challenges of life. I had a milestone this week that I will explain later in this entry. When my life became topsy turvy August 12, 2011, I had no time to absorb what was happening. I didn't cry when I awoke with a seizure, slurred speech, and my right side numb. I didn't cry in my first ambulance ride with the lights blinking, I didn't cry when I was told my brain was bleeding out or the transfer to Jefferson Hospital. I didn't cry when I…Continue
Greetings! Happy Thanksgiving to everyone!
I am new here. My 25 y/o son had two surgeries in July to remove an epidermoid cyst/tumor. Not fun. Doctors said they "got it all." I just found out he now has another tumor close to the original, but is a "new one." He is planning surgery Dec. 21st. I want him to WAIT.
Is there anyone out there who has experienced an epidermoid tumor? Thank you.
Added by Betsy Macdonald on October 27, 2012 at 8:31pm — No Comments
There are so many stories I could write. What a journey this has been and now continues for me. I read just a small amount of stories on here and can relate to some. My story of course is my own. I own it and I hate it. I lost my husband to this tumor. I lost the hearing in my left ear. Woke up and it was a whole new way of hearing the world around me. I hated listening to music which I had always loved. My voice has changed and made my children cry. They wanted their old Mom back. My laugh…Continue
I hate the fact that this tumor is now growing back. I had a resection done and stereotactic radiation treatments. It is now 15 yrs later and it is growing again. I have been told that it is too risky for another operation and no more radiation. I have lots of symptoms and have already begun the self doubt that I had years ago. I am very angry, trying so hard to get a grip on it but it just isn't working.
As some of you know, I have had a miraculous recovery from a brain tumor. Although I know it was essentially God's work, I have also been a patient of natural medicine/homeopathic since news of the tumor growth four years ago. So on that note, I wanted to share an interesting article I came across which mentions Turmeric as an anti-cancer agent (it is also said across other articles that it's basically an anti-inflammatory and very helpful with stomach and overall health…Continue
Added by Marisa Bairros on September 28, 2012 at 10:31am — No Comments