April 2011 Blog Posts (7)

Looking for bloggers

I'm looking for bloggers to add a new facet to IJB. I will be writing a blog, too. So I'd need you to blog at least 2 times per week. I need you to write about anything related or stemming from a brain tumor diagnosis. Please make sure feelings are genuine. Here's what I'm looking for:

 

1. Survivor-write about stuggles or good things that all relate to your tumor's effects, treatments, or aftermath. Don't write about boy troubles, but write about a boy…

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Added by Beth Rosenthal on April 30, 2011 at 12:44pm — No Comments

Feeling nothing

I'm not sure if this has any relation to my tumor, but I don't have enthusiasm for much in life. I was an athlete, dancer, and good student before my diagnosis and obviously the athlete title was taken. I am trying to really live, but only calling my mom or working on IJB stuff excites me. Although I have been making more of an effort to reach out to friends or try something new, it's not something I do naturally. I'm concerned about it. It's not a form of depression, I don't think. I am…

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Added by Beth Rosenthal on April 26, 2011 at 9:17pm — 2 Comments

My ambivalent feelings and survivor's guilt?

 I feel so grateful that my worst days are behind me. I should feel grateful that my surgery and radiation treatments are done, that I've managed with my left sided-weakness, deaf left ear and bad balance, and I survived trigeminal neuralgia pain without proper treatment for 12 years.  Depending on my mood of the day I can feel relieved, thrilled, and sometimes grateful that I can finally focus on living. I never could truly focus on my future. You can't when you're in agonizing pain.…

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Added by Beth Rosenthal on April 24, 2011 at 10:00am — 2 Comments

MRI results... No changes

I went for an MRI yesterday and got the results today. At first I was not sure how to take it when the doctor said " There was no change in any of the tumors"  This is what I was expecting to here or atleast I  thought it was. He did give me some hope though, I get to stop Chemo for 6 months to allow my bone marrow to regenerate. Still have to go for MRI's every three months, but if there continues to be no change we will discuss options at that point. Now if they can get the seizures taken…

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Added by Amberly Wilson on April 12, 2011 at 4:38pm — 6 Comments

Schwannoma

Has anyone had a Schwannoma?

Added by Maria C. Schneider on April 8, 2011 at 10:31pm — 7 Comments

2nd operation is scheduled

I had my first operation in June 2007, benign tumor removed from my left temporal lob (size of an orange as my consultant described it). I recovered very quickly, there was no after treatment, only occasional mri check ups. I was delighted to have the surgery done, and I was just trying to forget about the whole experience, thinking this is my past, I have to concentrate on my future ...

I had a little boy in the following year and was happier than ever, gave up my job to be able to…

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Added by Judit Berki on April 5, 2011 at 7:20pm — 4 Comments

Looking for CELL PHONE brain tumor victims

On April 27, 2010 my husband was diagnosed with a glioma. The day he was diagnosed his doctor asked him a variety of questions as to what could have contributed to the tumor. As I had never heard of the dangers of cell phones before, I was quite startled when the doctor asked my husband how often he used his cell phone. I had no idea at the time why he would ask such as question. I thought it was an odd question to ask. I knew his neurologist was on to something when he then asked which side…

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Added by Kristen Cobb on April 3, 2011 at 3:56am — 1 Comment

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