All Blog Posts Tagged 'trigeminal' (7)

Who I was on 9/11

I remember the morning of 9/11/01 well. I was at work and we heard about the 1st plane. My supervisor said " It's terrorists". I thought he was just being dramatic and that was was some kind of accident. When we found out the truth and I was home from work, my last f/t job, I called my family who lived in Manhattan. Everyone was fine. Then I spoke to my friend, my childhood friend, and she told me that two classmates we know were killed. They were working for Cantor Fitzgerald. And you know…

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Added by Beth Rosenthal on September 11, 2011 at 12:27pm — No Comments

The differences in my friendships post diagnosis

I have been on vacation this past week. Although wonderful, it is stirring up very sad feelings. I first went to Vermont and saw my cousin Sharon. Sharon was amazing to me when I had my surgery and radiation in 1987, when I was 11 yrs. old. She came to visit me in the hospital all the time, made me cookies, made my face up, etc. Sharon and I grew apart as she aged. Now she is married with two children. And I'm happy that she is loving life.



I also saw my childhood best friend in…

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Added by Beth Rosenthal on August 29, 2011 at 11:30pm — 1 Comment

Complicated feeling on Mother's Day; tumor vs. hormones

I've always enjoyed celebrating my mom. Not only is she the reason I'm living, but she is the reason that I willed myself to live. My trigeminal nueralgia pain was so unbearable that I easily could have jumped off of a bridge. However, knowing it might have emotionally crippled my mom is why I never did.

I remember when I was in my mid 20's thinking I had plenty of time to be a mother. I also thought that I never would want to adjust my pain medicine (which didn't manage the pain) for…

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Added by Beth Rosenthal on May 9, 2011 at 11:10pm — 4 Comments

My ambivalent feelings and survivor's guilt?

 I feel so grateful that my worst days are behind me. I should feel grateful that my surgery and radiation treatments are done, that I've managed with my left sided-weakness, deaf left ear and bad balance, and I survived trigeminal neuralgia pain without proper treatment for 12 years.  Depending on my mood of the day I can feel relieved, thrilled, and sometimes grateful that I can finally focus on living. I never could truly focus on my future. You can't when you're in agonizing pain.…

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Added by Beth Rosenthal on April 24, 2011 at 10:00am — 2 Comments

Begining to grieve

Although it's been two decades since my brain tumor treatment, I don't think that I've ever grieved. I was so busy trying to move past my many side effects and my trigeminal neuralgia, chronic facial pain, that I never really understood the entire impact that my brain tumor has had on my life. I probably won't understand it in its entirety until I'm 90.



I understand how my education and career was impacted and I'm really not sure if that's something that I will ever accept. It's… Continue

Added by Beth Rosenthal on March 2, 2010 at 11:31am — 4 Comments

My Struggles

I've been trying to sort out my feelings about how my life has been up to this point. It's not something that I really want to do but, I think it's something that's needed if I want to make my life better. I think that one of the biggest problems may be that I'm just lonely. I didn't really have any peers to share my feelings with. I never knew any other children who had a benign brain tumor or something similar. I had one friend who came to visit me while I was recovering at home after my… Continue

Added by Beth Rosenthal on February 11, 2010 at 1:15pm — 8 Comments

How do you grow old gracefully when an illness happens in chilhood?

I was just a frilly girl who loved gymnastics and dancing. I knew that my mom was successful in part, because of her education, I planned on getting an Ivy League education, like both of my parents. I practiced gymastics and studied. I was proud of my high grades. That was how it was, in my eleven year old mind.



Even today, as a 36 yr. old woman, I haven't been able to fully absorb how my life changed because of my brain tumor diagnosis.My parents found out and two weeks later the… Continue

Added by Beth Rosenthal on February 8, 2010 at 11:08pm — 2 Comments

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