I had my last MRI on valentine's day, (I love MRI's! No joke, they're a breeze!) to see if radiation shrunk it at all.
My NS said it didn't. I'll most likely have this "squatter" for the rest of my life, and it'll probably just keep regrowing reeeeaaally slowly. I might have another surgery later in life, or more radiation or chemo. It could be worse, but I was really hoping it'd leave.
I had to leave my last year of high school, and I have to learn to drive again before I start college (hopefully) this fall.
It's very hard to have people tell you "at least it isnt cancer" and not be angry, but it's okay. They think it isn't a struggle, but I'm not angry with them. I don't want them to know what it's like. Mine won't go away.
My biggest fear is this will become malignant, or I'll have to go on dexamethasone again. (I lost 30 pounds, I don't want to put it back on.) Can I do the things I wanted to? Should I risk it, knowing I could get bad again, or worse?
Bottom line is, whatever happens, I'll keep going.