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Comment by Lisa on April 26, 2013 at 8:03am

Hi Hanna,  I hope this finds you at the very least doing better with the dizziness.  All I can draw from is my experience and to tell you since I had my first surgery (2/12/12).  My most recent 11/12/13 because of complications.   I am still plagued with some dizziness, a headache and some rather peculiar symptoms. (you can see my story on my blog)  For me, I have learned that these things have to be managed.  It has (somehow) just become the "norm". Although it is somewhat bothersome at times, the brain being an amazing organ, learns to adjust and you go on.  Do note that if your symptoms become more than you can handle, DO BY ALL MEANS, go to your DR.  Get his/her opinion.  I've learned..You never know..could be something outside the norm.  I wish you all the best.  Be patient..healing takes time.

Comment by Shelby Melton RNS on December 27, 2012 at 2:36am

Hey Hanna Banana! I still have dizzy episodes 2 and a half years after craniotomy. Right temporal lobe. I wake up with headaches and dizziness everyday. Could be medication as well as a lot of other factors. Talk to your neurosurgeon and neurologist for sure. They may be able to do something to decrease the severity of it or at least let you know if it is something you dont have to worry about so much. Hope you get to feeling better soon!

Comment by John on December 26, 2012 at 12:23am

Hi Hanna, I had my craniotomy (right temporal parietal lobe) in August 2011 and suffered/suffer through dizziness and wooziness spells as well.  Things are better now, but it's taken 1.5 years to get to the point I am at now. The dizziness may be due to varying factors such as any anti-seizure med you may be taking or maybe just from the surgery. I've gone through two surgeries, radiation therapy, and currently taking 3,500 mg of Keppra.

I think for my circumstances, all the trauma to my brain from the meds, surgery, and radiation has caused my brain to have issues processing information. Looking up and down gives me trouble along with when there's a lot of visual and audio stimulation. It's like my brain can't keep up with the information it's receiving from my ocular (eyes), vestibular (ears), and somato (touch) sensory systems and therefore I get these dizzy spells and get mentally tired quickly. I'm currently seeing a neurologic physical therapist. I got a referral to one from an ENT (ear/nose/throat) doctor. I think the neurologic PT has helped. Basically the PT gives me some exercises to do to help retrain the brain to compensate for any deficiencies it may have. It's took some figuring out. I also went to see my primary care physician and also a cardiologist to check if it might be a low-blood pressure issue. Please let me know if you have any questions.

Comment by Beth Rosenthal on December 25, 2012 at 11:19pm

Hi Hanna. I get dizzy, too. I can't lie on my back, turn certain ways, or hold my head up completely straight. It's really annoying but, I've learned to manage it.