I too am surviving/survivor of a Trigeminal Neuroma aka trigeminal Schwannoma.Currently I have 3.5cm recurrent mass, which I received Gamma Knife for in Aug 2010. My 6 month check up, a few weeks ago ,showed no increase in growth or changes. My first tumor was 5.67cm that was removed via Craniatonomy 5/02. How are you feeling?
Hello Sarah and thanks for joining. I started this site a year ago because I had such difficulty finding benign brain tumor survivors, like myself. I'm a long term survivor ( but have many side-effects): diagnosed in 1985 at age 11. Besides connecting with survivors, we can exchange medical info, get support, etc. Please message me with any questions or comments. Thanks again for joining